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Eva, Thinking of you and your hubby, hope you get some answers soon and out of the emergency room, at least
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Alva,
Thanks. You could be right. I will definitely ask about it.
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Symptoms of cervical spine (numbness, tingling in arms, hands, dropping of things held in hands, muscles in spasm neck, scapular, underarm area, headache, stiff neck, should be easily parsed out from lower spine "inability to walk, severe pain, pain into heels, etc. Then you have things that only a lumbar puncture can show, which would be stuff in the fluids in spine and around brain. I know they must be doing some of this. Just manipulating his arms and legs are going to tell them a whole bunch of stuff this ISN'T but I would want a lumbar puncture to be sure in case you are looking at some sort of very serious stuff to do with the brain. Meningitis, encephalitis, et al.

Yikes. Yikes. This is new for him I am assuming and must be quite frightening. Would be for me. I will hope to hear better news tomorrow. Your system has issues. Lordy, so does OURS. I am wishing you so much luck, Eva
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Alva,
Pain in arm, neck, back and down, almost everywhere.
This is our health system in Canada, they are very good if there is emergent need, but there is no one bed available to transfer him.
So in emergency they only control pain, did some testing, all good. But no scans or other testing yet.
It is exhausting, at least pain is under control as hubby was moving and walking quite well.
Maybe will find out more tomorrow. I have a little more hope at least his doctor appeared who will take care of him going forward.
They need to find what is causing that pain, hoping they don’t send him home with prescriptions for various pain killers. I don’t think they will as with PD they need to make sure he is back to baseline to be safely discharged. That they take seriously in knowing caregiver cannot be overwhelmed, yesterday they practically kicked me out to go take care of myself.
Excellent nursing staff, and they really care. It is the system that is not working, people do excellent job amongst all that chaos.
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Eva, can you tell us how this pain is manifesting?
Has he had scans of the area in pain?
I cannot believe you are not admitted and he's still in ER. Call on Social Services tomorrow; be certain this is well covered.
Yikes I am so sorry about this and am thinking you must be exhausted. I checked in to night just to see how things are with you. Please take care. Your poor hubby!
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Hothouseflower, Llama, Alva, Way, thank you.
No changes or plan as hubby is still in emergency.
Yesterday pain was worse and the gave him Seroquel for agitation and anxiety and enough painkillers that he has less pain, but no idea what is causing it.
Maybe tomorrow they will transfer him.
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Eva, Thinking of you and your DH today.
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Eva: You're welcome.
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Eva,
Thinking of you and your hubby today.
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@Evamar,

so sorry to hear about your husband . I hope he starts getting the care he needs soon . Remember to eat and get your rest , and remember to take daily meds if you normally take any .
(((Hugs))).
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Thanks Nacy,
Fear it is going to be not easy today.
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Eva, hope you got some sleep, thinking of you and your husband.

Keep us posted
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Thanks Llama and Golden.
Hubby in emergency still no rooms and shortage of staff so no improvement today.
Golden,
Hope all goes well tomorrow and it will. I know that final transaction and waiting seems like forever.
I was nervous too in July. It made me laugh to see all that money and poof like magic it disappeared in few moments as condo was paid from it. No regrets though, have lovely place.
Feels lonely tonight.
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According to my realtor, all is good to go for the house possession tomorrow. I am relieved and will be more so when the final transaction has been completed ($$$). It has been a work in progress for several years and part of a major transition in my life. At least my kids will not have to deal with the house when I pass. If I was to do it again I would have moved sooner.
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Eva: Prayers for your DH. I am so sorry that he is in so much pain. Hope that he gets some relief soon.

Been a tough year for many. Myself included.
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(((((Eva))))) I'm so sorry. I pray the doctor comes soon and is able to make your dh more comfortable. This is a very tough time for both of you.
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Thank you everyone for your support.
They are going to admit my husband to hospital, spending time in emergency as there are no rooms available. Maybe tomorrow?
Doctor was supposed to see us or call at 2pm.
Not happening.
Hubby is in so much pain, nothing helped so far, not eating at all and very agitated which is unusual for him.
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Wow, Margaret! I was wondering where you were. Now I know.
Evamar, hope you will update us on your hubby.
Everyone hang in there. It's a bumpy ride.
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Eva, so sorry, 😞 thinking of you, and keep us posted.
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Evamar,

I hope everything works out for your husband.

Hugs
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Margaret - What a journey!!! I'm glad you survived it with no ill effects. Please update us re the CT scan I didn't know you needed one.

Nacy - It's good to keep your peace.

Eva - Moving is such a lot of work and so is settling in to a new place. I am so sorry to hear that your dh is in hospital, I hope you can get some rest and they find out what is wrong. I think needing activity and projects is part of coping with your husband's illness. You may be grieving the losses you both are experiencing. Such a hard time!!! ((((hugs))))
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Few hours ago my husband ended up in hospital, no immediate danger as he had no heart attack or stroke.
Nothing to do now only wait till morning when they can run some tests and determine what is wrong which could be days.
Nothing to do with Parkinson’s as per neurologist sudden changes don’t occur, so very distressing but many symptoms point to something else.
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Margaret: You did well under adversity. Good for you.
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Margaret,
I am glad it is behind you.
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Nacy,
Hard work moving but I think we are capable of more than we are giving ourselves credit for.
I am not super strong but moved in summer and between liquidating, decluttering, selling, giving away furniture, household items, looking for new furniture, ordering, legal and other concerns I worked 10-16 hours days. Actually it felt great, physically as well. Now even after 3 months there are things to do, I am in need to do more.
Having sick and getting worse husband seems to create a need for me to be constantly on the move. I need projects, ideas, purpose.
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I am so happily done with posters that cause me anxiety, or tension.

So much easier for me now to just walk away.

I'm at peace in my heart, don't need drama.

It's a very good place to be.

Many of the post that are completely off the wall are just here out of boredom. I'm not giving anyone the satisfaction of causing me drama anymore.

🙏✌️🖖🤘🤗
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Margaret, WOW, your whole body must ache. That's quite the adventure! I know 30 year olds that wouldnt be able to handle that.

Take care, get some rest, things will get unpacked , when they get unpacked. No hurry now, to get things done.
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Dear Friends, I’ve finished one of the most difficult weeks of my life – completing packing up the farm house and driving 1500kms to Alice Springs in the truck on a very bouncy Stuart Highway. Three days and nights, including one where the accommodation was booked out and we both spent an uncomfortable night in the truck cabin. We got here at 6pm Thursday, in time for my CT scan at 10am yesterday morning.

It’s a big truck, the biggest ‘rigid’ (ie not a semi-trailer), with 10 wheels, plus a car trailer with four more wheels. One thing that might be useful for more (normal? sensible?) posters might be the sticker I read every time I climb up the 4 step ladder into the truck cabin. The little picture shows ‘3 points anchorage’ - two hands on the side hand rails and one foot on a step, while the other foot takes the next step up. I am now very used to ‘3 points holding on’ for stability, and it’s not a bad habit to keep living with. A much better habit than the trip. I glad that’s the last load. I reckon at 77 I’m too old for this.

It’s good to find that the Age Care people are still in the same place!
Love, Margaret
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Nacy: What an inspiration he was!
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Nacy--yes! Truly inspiring.
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