I have no idea what I'm going to do! After months of poking and prodding and thinking my issues were just hormonal, the doctor confirmed today that I have Lupus. I had suspected this for quite some time, but after having so many doctors tell me that I was imagining things, I chalked my symptoms up to stress.
I've read so many blogs, articles and threads about how the caregiver's health declines, but I never expected to be one of the physically unhealthy caregivers. In fact, I assumed that I was one of the younger caregivers at 40 (and not even a full-time caregiver at that).
So, of course, I have been researching like crazy. Clearly, I'm going to need to change my lifestyle... but HOW?
Change to an organic, less processed diet? OK... can't afford that. Dad doesn't eat that stuff. How am I going to continue hanging out with him without seeming "uppity" because I can't eat the food?
Reduce stress... HAHAHAHAHA!!!!!!!!!!!!!!
Exercise more.... I repeat HAHAHAHAHAHA!!!!!
Thankfully, Dad doesn't understand all of this, and I REALLY don't want anyone to know. If any of the "family" finds out, they will somehow make this my fault or accuse me of seeking sympathy or even making it up. After all, they think I'm doing such a horrible job at this (apparently, I should take care of him 24/7 and "pay myself" instead of working my "fancy" job with my "fancy" education)
So much for reducing stress. I don't know what to do...
Sure - if you’re shopping organic at Whole Foods you’re likely to spend the equivalent of a house payment. Try instead, the organic section at your regularly grocery store. Costco is another very good source. I know must people living alone tend to think having to buy a container of three half gallon cartons of milk seems impractical- but the expiration dates are usually really good. The organic milk I have from Costco sitting in my fridge right now has December 19th as it’s expiration - I bought it October 27th.
I estimate my family eats about 50% organic. All the fruits and veggies, all dairy except cheese and about half our meats. I buy organic mainly cause GMO foods freak me out. Seriously, should anyone be eating something “Genetically Modified”?
You're already thinking about what to do next, so you're on the right path. You already know what sounds unreasonable and what sounds impossible. You are ahead of the game.
Don't try to implement your changes at once. And start small.
I started by replacing candy with organic, fair trade chocolate. It was rich, indulgent and even though more expensive, I ate less and ended up spending less. Then one day I noticed all the organic "stuff" was on that aisle. I started getting everything I could on that aisle. The more I shopped organic, the more my grocery store rewarded me with organic coupons; the more money I saved. And the time I saved hitting produce, organic aisle, milk/faux milk aisle while skipping the rest of the store - invaluable.
So one little chocolate bar scored me a mostly organic lifestyle, a less stressful, one-aisle shopping experience (so much better than bumping buggies with the harried shoppers), and time that I could use to exercise but haven't...yet.
You got this.
Tinyblu, when I had to make some lifestyle changes, I knew that getting exercise would be the problem. And I knew it was attitude, not a physical problem. I actually had three sessions with a hypnotist to adjust that attitude! I'm not saying that is what you should do, just that I can empathize with a resistance to exercise, especially when you already have a full schedule. But I did it, and you can too!
So sorry to hear about your diagnosis.
If you are educated and smart deep down you have to know that you have to step back.
Lupus can be very serious. It can affect your major organs. Any small illness can land you in the hospital and be life threatening.
With all that being said if you take care of yourself like you know you should you can keep things under control.
Eating healthy is not that much more if any more expensive it’s just not very convenient. Especially if you don’t like cooking for yourself.
If your Dad is in Assisted Living, he is Assisted.
Is your Dads life really more important than your own?
I developed Discoid Lupus when my Mom was in the Nursing Home. The stress of that and my sister driving me nuts about Mom was just too much. I was 50.
You are never too old or too young for your body to send you a very clear and serious message.
Please take care of your self first.
I think this is where you get off the train. Let the rest of dad's family (he has 12 other children and a passle of ex-wives, right?) step in and don't pay them any mind.
Go back to one job and use your "spare" time to take care of yourself. You've done your part.
Be well.
It certainly was never "all in your head," and it wasn't caused by stress or anything you did. It wasn't caused by your lifestyle. Keep that firmly in mind. Not Your Fault. Don't accept any guilt trips.
Reducing stress is always recommended with Lupus. (Reducing stress would be good for all of us!) One thing I suggest is less contact with your critical, negative family members. You do have to stay in touch with them, but keep it to a minimum!
Consider reducing your caregiving time. If family is willing to pay you (with you dad's money, I assume) they should have no problem paying a helper from an agency. (Who takes care of Dad when you are at your fancy job?) Are there times or tasks that are particularly stressful for you? Helping Dad shower? Settling him for bed? Having hired help could relieve you of those tasks.
While the hired help is there, go for a walk. I know, I know, how can you fit that in? That was a big lifestyle change for me when I was diagnosed with diabetes. Walking is the easiest, cheapest, and for some things most effective exercise. There are videos for walking exercises in your home, when the weather is bad.
Changes in eating habits is also part of diabetes treatment, and I know that can be a real challenge -- and cause its own level of stress. Don't think you have to do everything at once. If you are now having processed food 5 days a week and you can cut it down to 3 without a lot of trauma, that's a good start.
Is work a haven away from the caregiving and/or is it a source of stress?
I agree with Sunnygirl. Work with a professional to help you adjust to these changes.