Hi all. I’m severely conflicted. I’ve been estranged from my mom but not my brother. She’s in hospice care and says she wants to die at home. My brother is a high functioning autistic man with mild cerebral palsy. I know for a fact he can’t handle the burden of her death if I’m not there. I’m the only income at their home currently because the SSI covers their basics. He’s with her 24/7 and quite frankly, she’s dying quite soon as she’s showing all the signs. I will be sad but not the same as one who’s actually kept a non toxic relationship with those good parents. I want her to pass in the hospital while being monitored at all times. Is that the right thing to do so my brother doesn’t have to bear the burden of finding her dead?
How is your Mom doing? Did your Mom go into the hospital or is she still at home? Thinking about you and your brother. Take care.
Off topic here. Does your brother receive SSI? If so then he has Medicaid. My nephew was just approved to be in a NJ State program for the disabled. One of the criteria was CP which he has on the left side. We are now waiting for a voucher for an apt. There are other services they provide. I know this is not something you will pursue now, but just a thought if he isn't in somekind of program.
I'm not too familiar with conditions that your brother is in and it's hard to know how anyone will react around death, but it sounds like he is capable of understanding what is going on. Is there any way for you to be with them until she passes? Or possibly other family members or friends who would be willing to be there for your mom and brother?