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By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
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V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
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Lewy's body dementia is terrible and I can so relate to your situation. My 93 year old Mom had it. Her brain was broken and no matter how much we reassured her, her mind was made up. According to her, ALL female caregivers were having affairs with my Dad! And my Dad was a kind, meek man ..LOL...Her anger, confusion and anxiety was through the roof! She was calling the kindest, most gentle caregivers, "jack ass", etc. Almost comical if it wasn't so tragic. I was in the process of working with her doctor, to find out if she could be given something for her anxiety. But the next week she passed away. Partially relieved for her, that her struggle was over, but also mourning the loss of my Mom. It's just such a difficult learning process. This website helped me more than anything else. Just knowing I wasn't alone, and others were going through similar situations. I wish you all the best.
Oh I can so relate to this. My mom had Lewy and “poison”. For mom, it was a phase, lasted maybe 4-5 months when she first moved into a NH. Her weight loss was not “significant” as in more than 10% in 30 days but was around 5% range. The % loss matters as there’s protocols that kick in for how to handle if it’s “significant”. So ask abt her %.
I do think that the seasoning blends, oils, etc used in cooking since their institutional foodservice do have a different taste & texture & somehow they can sense it. Plus they don’t have the smell they are used to from their home kitchen to give them clues as to what the menu is, to help them identify stuff. Their in another solar system most of the time but by gosh they can tell that taco seasoning isn’t right. LOL.
see if dietary can do sandwiches for your mom. For my mom, if she had a sandwich, she would totally eat it all. Just something about being in control of eating seemed to make a big butt difference for her. But in my experience the weight loss is kinda inevitable. It’s pretty amazing & somewhat horrifying just how tiny they can get but still be keepin on. Their not expending much in calories, so gradual weight loss isn’t a biggie. But they do need to do fluids. If she’s drinking water & juices, that good and this is important to do.
regarding the protein drinks, this is what I was told by the DON & dietary at my moms NH, that you really want them to actually have to eat even if they get a liquid as a small supplemental; that eating as a process is “active”, they have to move food about, cut/fork, lift, open, bite, chew, swallow. Eating is a physical act and keeps their cognitive ability up and going 2-3 times a day. If they switch over to being on liquid diet, all that goes away; it’s only “passive” feeding that they will likely loose ability or interest to use a straw so then you face the issue of going enteral feeding (like Pegline, NG tube) or going onto hospice and letting nature run it’s course. There have been oodles of posts on this site about pros / cons on feeding tubes; it’s not a decision to take lightly.
If she does get a liquid supplement, ask about having her on one that is designed for low volume feeding. Most of the drinks we think of....like Boost, Ensure... are based on getting the nutrition by drinking the entire 8-12 oz. bottle. Well they arent likely to do that. There are drinks specifically designed for high protein high nutrition low volume feeding with probiotics added (so easier processed in her gut). When my mom became bedfast (after a bad fall), she had her food mechanized for meals (so easier to “cut”), got a sandwich every other day AND had a can of Abbot labs Two Cal HN added to her daily dietary. Hospice MD ordered it and it was billed within hospice benefit. Dietary did the can either at lunch or dinner depending on what their day was like or when hospice aide was there. She was on hospice 18 months & finfound that hospice and NH staff really worked well together for my moms needs. It’s on retrospect amazing just how little food they need and still be ok. Good luck in all this. It will get easier over time.
Would she accept food more easily if it were sealed? Have them wrap her plates and bowl with plastic wrap. Would she more easily accept things like Premier, Boost, Ensure? Those are sealed and not easily tampered with. There is a product called Magic Cup it is like an ice cream but has added protein, vitamins and calories. Might also be a time to talk to the doctor about adjusting medications if this is a newer paranoia.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
I do think that the seasoning blends, oils, etc used in cooking since their institutional foodservice do have a different taste & texture & somehow they can sense it. Plus they don’t have the smell they are used to from their home kitchen to give them clues as to what the menu is, to help them identify stuff. Their in another solar system most of the time but by gosh they can tell that taco seasoning isn’t right. LOL.
see if dietary can do sandwiches for your mom. For my mom, if she had a sandwich, she would totally eat it all. Just something about being in control of eating seemed to make a big butt difference for her. But in my experience the weight loss is kinda inevitable. It’s pretty amazing & somewhat horrifying just how tiny they can get but still be keepin on. Their not expending much in calories, so gradual weight loss isn’t a biggie. But they do need to do fluids. If she’s drinking water & juices, that good and this is important to do.
regarding the protein drinks, this is what I was told by the DON & dietary at my moms NH, that you really want them to actually have to eat even if they get a liquid as a small supplemental; that eating as a process is “active”, they have to move food about, cut/fork, lift, open, bite, chew, swallow. Eating is a physical act and keeps their cognitive ability up and going 2-3 times a day. If they switch over to being on liquid diet, all that goes away; it’s only “passive” feeding that they will likely loose ability or interest to use a straw so then you face the issue of going enteral feeding (like Pegline, NG tube) or going onto hospice and letting nature run it’s course. There have been oodles of posts on this site about pros / cons on feeding tubes; it’s not a decision to take lightly.
If she does get a liquid supplement, ask about having her on one that is designed for low volume feeding. Most of the drinks we think of....like Boost, Ensure... are based on getting the nutrition by drinking the entire 8-12 oz. bottle. Well they arent likely to do that. There are drinks specifically designed for high protein high nutrition low volume feeding with probiotics added (so easier processed in her gut). When my mom became bedfast (after a bad fall), she had her food mechanized for meals (so easier to “cut”), got a sandwich every other day AND had a can of Abbot labs Two Cal HN added to her daily dietary. Hospice MD ordered it and it was billed within hospice benefit. Dietary did the can either at lunch or dinner depending on what their day was like or when hospice aide was there. She was on hospice 18 months & finfound that hospice and NH staff really worked well together for my moms needs. It’s on retrospect amazing just how little food they need and still be ok.
Good luck in all this. It will get easier over time.
Have them wrap her plates and bowl with plastic wrap.
Would she more easily accept things like Premier, Boost, Ensure? Those are sealed and not easily tampered with.
There is a product called Magic Cup it is like an ice cream but has added protein, vitamins and calories.
Might also be a time to talk to the doctor about adjusting medications if this is a newer paranoia.
Have you asked her doctor or asked the nursing home staff to ask for her to be put on a med to help control her paranoia?