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By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment. You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
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There is a LBD association that has a Facebook support group. It provides excellent support. My mom has LBD and trying to be her sole caretaker is destroying me and my own future. As a recent immigrant to the US and limited funds, she can't access benefits available to US citizens so it's all on me to provide her care. I wish you well.
Faith, I read your update below. I am so glad you have researched, and it sounds like you are well informed indeed. My brother died of sepsis before his "probable early Lewy's Dementia" could be so serious as to send him into the latter stages. It started with some balance issues, but doctors said that could be the Lewy's OR the benign long-standing tumor, long calcified, near his lower brain motor regions. He had loss of taste and smell, again, an either or thing. Then he had the hallucinations, and I would say that was the thing that let us know this was Lewy's. Some of the hallucinations were very very real, a whole story. He would see, say, a garden party around the pool (he didn't have) with one good looking fellow in white shorts with a haircut like Elvis, black and slicked back. Or he would see an immigrant woman huddled in the corner of his room, sheltering her child, so real that he reached out to comfort her and poof, she was gone. He had some foot tapping and some swallow issues, particularly with water that would come and go. He had some hallucinations that would come on from seeing something with patterns such as a hotel carpet or marbling on the walls in a public washroom. He could speak of seeing things differently in the distance, and we would sit and talk about it. He moved after selling his home and making me his POA and Trustee to an ALF. He had been diagnosed after a car accident and he said he had clues something was wrong. Would think his phone would stop working and he could hear, then not, then could hear ago while the phone company kept wagging their heads saying "Nothing is wrong with this phone". Given his complete descriptions to docs in hospital after his accident they diagnosed him, and he said while he was afraid of what was coming he was glad to know why his world looked so different. Like you, he noted symptoms being better and worse, and any anxiety would bring them on pretty bad. Not much else I can tell you. He died only two years after diagnosis, so he never had to descend into full blown dementia, which was his most fervent wish. I sure wish you good luck. There are a few Facebook sites to explore if you do FB. My best out to you.
Faith, you mention eating problems. Those are likely not directly related to the symptoms of Lewy's though some intermitant swallow problems can be common. Will you tell us please when your Father was diagnosed with Lewy's? What symptoms is he currently having? Have you, yourself, gone online to look up Lewy's dementia at all? It is important for you to know that, with ANY type of dementia, what we see with our own loved one will not necessarily be what YOU yourself see with your diagnosed love one. Tell us a bit about what your Dad is experiencing and what you are seeing. What specific problems do you currently have with Dad? Are you his caregiver? Are you his medical and financial POA? A place to begin your research: Go to the DementiaSocietyofAmerica.org. It will give you definitions and symptoms of different dementias.
I have done so much reading on the Internet about this dementia for at least 2 years. My dad doesn't have eating problems. He eats small stuff. He has the swallowing thing (spitting food back out and clearing his throat noise). They did an exam about a year ago for his throat but nothing needed to be done. At first they mentioned stretching but that was not needed. My dad has delusions/hallucinations occassionally. He had his first one over 5 years ago. Then he started shuffling his feet sometimes and he walks with his back bent over. There were times he told my mom somebody was crawling on the floor at nighttime, etc. She told him to stop telling me these things that were happening, because she didn't understand dementia at all. I would find him staring when he was laying down. He is showing all of the autonomic dysfunctions now. His body looks terrible (almost all of his bones can be seen in his body). I even call the Lewy Body resource number 2 years ago. She told me my dad was in the middle stage of this dementia. My dad's doctor was the one who told me dad's symptoms were those of Lewy Body dementia. I am constantly reading things on the internet and know that everyone's symptoms are not always the same. I was just trying to talk to someone, because I can't find any support groups that meet in person.
How long and what stage? My dad lost about 10 lbs back in August. He seems like he's losing about 10 lbs a year. His weight fluctuates between 107-110 since August. I think his symptoms have progressed, because now he has issues with his blood pressure, perspiration (complains he's hot but he's not), etc. Just trying to get an idea what stage he's in. He's been in hospice for several months.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
My mom has LBD and trying to be her sole caretaker is destroying me and my own future. As a recent immigrant to the US and limited funds, she can't access benefits available to US citizens so it's all on me to provide her care. I wish you well.
My brother died of sepsis before his "probable early Lewy's Dementia" could be so serious as to send him into the latter stages. It started with some balance issues, but doctors said that could be the Lewy's OR the benign long-standing tumor, long calcified, near his lower brain motor regions. He had loss of taste and smell, again, an either or thing. Then he had the hallucinations, and I would say that was the thing that let us know this was Lewy's. Some of the hallucinations were very very real, a whole story. He would see, say, a garden party around the pool (he didn't have) with one good looking fellow in white shorts with a haircut like Elvis, black and slicked back. Or he would see an immigrant woman huddled in the corner of his room, sheltering her child, so real that he reached out to comfort her and poof, she was gone. He had some foot tapping and some swallow issues, particularly with water that would come and go. He had some hallucinations that would come on from seeing something with patterns such as a hotel carpet or marbling on the walls in a public washroom. He could speak of seeing things differently in the distance, and we would sit and talk about it. He moved after selling his home and making me his POA and Trustee to an ALF. He had been diagnosed after a car accident and he said he had clues something was wrong. Would think his phone would stop working and he could hear, then not, then could hear ago while the phone company kept wagging their heads saying "Nothing is wrong with this phone". Given his complete descriptions to docs in hospital after his accident they diagnosed him, and he said while he was afraid of what was coming he was glad to know why his world looked so different.
Like you, he noted symptoms being better and worse, and any anxiety would bring them on pretty bad.
Not much else I can tell you. He died only two years after diagnosis, so he never had to descend into full blown dementia, which was his most fervent wish.
I sure wish you good luck.
There are a few Facebook sites to explore if you do FB.
My best out to you.
Will you tell us please when your Father was diagnosed with Lewy's? What symptoms is he currently having?
Have you, yourself, gone online to look up Lewy's dementia at all?
It is important for you to know that, with ANY type of dementia, what we see with our own loved one will not necessarily be what YOU yourself see with your diagnosed love one.
Tell us a bit about what your Dad is experiencing and what you are seeing. What specific problems do you currently have with Dad? Are you his caregiver? Are you his medical and financial POA?
A place to begin your research:
Go to the DementiaSocietyofAmerica.org. It will give you definitions and symptoms of different dementias.