I can't get her to do anything. My mother was with my sister in N.C for 8 mos. She will be with me now. All she does is sleep day and night. I can't get her to do anything. Is this normal? I am very worried and frustrated. I have trouble also getting her to eat. The Dr. say it is ok to let her sleep but I find it hard to believe as back in Oct she was not doing this. She has deteriorated since she has been with my sister in N.C. I just feel that all this sleep is not normal and there is something else that I could be doing to help her get past it. Please does anyone have suggetions?
She now has dementia and since I cannot do those activities with her as often as she was used to doing them, she sleeps a lot. Those activities were kind of her life. That's what she loved. Plus she constantly talks of the past; does not live there mentally at all, cognizant that way, but talks of little else. She is very sociable and people-loving, but Grand kids don't want to hear the same stuff over and over and over; she can't follow a conversation of any other kind very well. Now she sleeps a lot because the things she really loved to do are no longer present as much. Other stuff doesn't hold her attention as well. I wake her up all the time and try to get her to do something because I think it is bad for them to sleep too much.
I tend to think "Fine! You like to be in bed; be in bed. I just want you to be happy." When I spend a week with her, I sew and do projects; she likes me to show her my progress regularly. She is a very nice mom. I love her so much.
I told her "playing cards between 7:00 and 9:00 pm is enough for me, OK?" She goes to a center 3 days /week from 9:00 to 3:00.
But those doctors pile guilt and worries on me when they claim that sleeping during the day will lead to weaker bones, poor balance, creating a bad cycle of inactivity both mentally and physically. When I tell her that, she says "I'm the one who is 94. I do what a 94 years old body can do."
What is the real problem here? Has being active become a must, the only way of living? Some people meditate and it's OK. Why can't old people enjoy taking it easy in bed? Why do we immediately fear depression?
What if our old parents were allowed to relax in bed, do a 5 minutes of stretching exercises before each meal and do as they please?
A contact with people every day, family visiting every Saturday and Sunday, and the rest, - well -, weaker bones and poor balance is what getting older and older do to our bodies. Are we supposed to die on the treadmill?
When I ask my mom, it goes nowhere. She just wants to be nice to me; discussing a point is no longer important for her. It's like all she wants is hearing our voices, smiling back, hugs. Between visits, she just waits for the next one. Time has a different meaning for her than for us. I have things to do, but she doesn't; I have energy, she doesn't. It seems to make all the difference in our respective world.
Think about it, 90 some years is a long time.... they are tired.... they had a great busy life and deserve some shut eye. My parents still maintain their single family home, rake leaves, do the laundry, do the house cleaning, Dad fixes things, etc.... so when I find them asleep when I bring in the groceries, so be it.
Let's not over think this.
Does your Dad have a wheelchair?
I'm asking this because I made myself a little garden of herb in a elevated sandbox I recuperated from an old daycare. It's 3 feet high, and the box is 3'X3' and 10" high. It's made of oak and is beautiful. I spread a thick plastic at the bottom and sides not to destroy the wood. I added four 3" wheels. Wow! This garden rolls like a Cadillac. I don't know what I am going to do this winter though; it's on the porch.
Maybe your Dad would have fun with something like that. But maybe his gardening days are over.
My father could not care less about puzzles and this sort of things. He liked listening to the radio. However, I think old people get less and less interested in movies, radio, good programs on TV. They don't feel like they can make a difference anymore, I guess; so, they are less and less part of this world.
We live so long, don't you think? I mean we ALL live much longer; not only the ones who have the constitution of an ox. These ones didn't sleep all day; they were just still working. To the end, like a horse.
But now, our medication keep us going, and going, but not packed with "natural" energy; just enough to maintain the body working.
I don't know. Getting old is no longer working to the end, or being store in the corner. Old age has a status now: we're too many getting there! We see our parents getting very old in a very different way than the past generation. We didn't learn that. And it's not easy knowing what they want, what they think and what they feel. They don't say!
I would so much press my mother for answers, but all she really would like is that my husband and I come to live with her. And life would be like in her old days, with the baby in his playpen in the middle of the kitchen while busy mothers prepare the meal, do laundry and supervise homework of the older kids, around the kitchen table. "Mom", I tell her, "it can't be like that anymore. We have to run to the doctor at the tiniest discomfort. You could make a rosary with your pills. Nothing is simple anymore. We depend on specialist and professionals. I am one in my job and you need one for your needs."
The human body is meant for only so many years, eventually it just wears out.
May be sleeping more is just natures way of making those final years easier.
If you've ruled out depression or boredom etc. then maybe it's time to be at peace with their sleeping so much. At least they aren't suffering.
If you're not able to contribute at the very least 50% of your mother's care, then I wouldn't fight your sister's idea to place her in a care home.
Your sister is probably very drained and realistic about what she as one person can continue to do. Your sister needs some compassion not sibling fighting.
Who has the durable and medical POA for mom?
So what are the reasonable options. Should mother come home? Do you mean to her own home, or your sister's home, or your home? Sister says she can no longer look after herself. You disagree. But why would sister lie about this? Persons with Parkinson's Disease with Dementia (PDD) get worse. It varies by individual a lot, but generally speaking PDD often advances faster than ALZ does. So even if mother can take care of most of her needs now, that may not last long at all. As dementia advances it becomes impossible for the person who has it to live alone. She might continue to live at home, if someone lives with her. (My husband lived at home with me.) Who do you propose that someone should be? Sister has already opted out. Can Mom afford around-the-clock in-home care? Can you take some of the shifts?
Staying in familiar surroundings definitely does have benefits. But being in an environment where there is mild stimulation and lots of activities and trained oversight has a lot of benefits, too.
Is there only one home being considered now? Are there other possibilities in the area?
She is way too young to be feeling this bad. Hopefully you can help her get all this straightened out. The meds may be interfering with each other.
Your mom's sleep apnea can aggravate all of her other medical issues. She needs her sleep to aid her body. Sleep apnea causes the heart to work very hard and it can lead to strokes and other things. I would highly encourage her to revisit C-pap threapy as txcamper sugests.
They have new machines that are quiet and easy to operate. I am new to cpap treatment, but it has really helped me. I wear a nasal pillow too and it's quite comfortable. There are websites just for cpap users and that can provide lots of emotional support too. Good luck.