I switched my mom to a pallative care model. Intellectually I know its the right thing to do at her advanced stage and stopping Mementine is common. She was like a car with an 8 cylinder engine with only one cyclinder working. We took her off the drug and now 3 weeks later her memory is a little worse. It could very likely be the Mementine. Naturally I'm second guessing this a little, to continue the car analogy do you continue to do tune ups on a car with only one cylinder out of eight firing?
The drug wasn't curing her and she was getting worse regardless, but the other day she stopped recognizing my brother as her son but as her friend. That said, even with the drug she was having that same issue with me.
For those that got to this stage, did you stop the drug or continue? I'm also of the opinion that she's suffering from the disease and her wishes were not to prolong it.
I think palliative care at this point is the right thing to do. It is time to help her by not prolonging her misery.
I think at the later stages the drugs do little but there are some that there is a noticeable decline, or a change in personality. I think if the change is adversely effecting anyone then going back on the drug is a valid option.
She will decline with or without the medication. How fast the decline would be you will neve know.