I know that this question seems insensitive, however I have observed a pattern in a relative that triggers my suspicion. He has non-Alzheimer's dementia. He still remembers people, places and some recent events, but has short-term memory losses, disorientation to place and time, and behavioral issues. He repeats questions often. The thing is, he seems to repeat questions much more frequently when he disagrees with the answer. I have also noticed that he repeats himself much more around people that give him his way when he persists. In other words, he acts like a spoiled kid in a toy store. Most things I have read about dementia sound like the person goes back in time in memory and that they act out the age of their last memory. Can someone with dementia remember some recent events but then behave like a child? Or, could he be mentally aware enough to intentionally take advantage of his memory loss to get his way?
No. People with dementia do not keep track of how many times they've asked a question, or if they ask it more under some conditions than other others. An outsider may make these observations but that doesn't mean the dementia person is doing it consciously.
My heart breaks for the person with dementia who is treated with suspicion.
The kind of dementia my husband has -- Lewy Body Dementia -- is characterized by fluctuations in cognitive ability. When people with this disease are in a care center that has not handled it before and has not made an effort to learn about it, staff sometimes accuse them of faking it. How can they not know how to do that this afternoon when they could do it this morning? They must just be trying to manipulate us. I've heard about this from fellow caregivers frustrated at how a care center is handling their loved ones more than once. Sad, sad, sad.
In any kind of dementia, there are ups and downs. There are things the person can do and other things they can't. There is not a uniform level of disability across all aspects of mental activity.
Sometimes even new caregivers can't accept the reality of their loved one's dementia. A wife will be outraged that her husband is behaving this way because she knows perfectly well he could do better if he tried -- he could do better yesterday. Sigh.
Sorry. This question pushed one of my hot buttons!
I am also frustrated because we have not been told what type of dementia he even has, other than it is not Alzheimers. He is scheduled for a test to determine the severity of his dementia next month. I hope that we find out his type so that we can arm ourselves with information.
If you can help your relative recognize her own limits and that she is a wonderful caregiver even if she can't be SuperWife and do everything Hubby wants done, that would be a kindness. And she needs to take care of herself whether he is deliberately manipulating her or he can't help it and the dementia is driving him.
If you do get a more specific tentative diagnosis, that would help you learn more. Absolute diagnoses are only possible via a brain autospy, but usually an educated guess can be made by professionals.
Good luck to all of you.
After reading the comments above, from Jeanne and Cwac, I feel somewhat ashamed of my thoughts that my Mom is faking it, and selfish. I'm glad I saw this posting, because it has brought me a greater understanding of what the illness is doing to my sweet Mom's brain. (She really is a sweet Mom.)
Thanks for the question, Tracy, and thanks for the good and helpful responses.
after all, we all do that sometimes. picture youve got 3 projects going at once, someone askes you something, do you always remember what they asked? have you ever walked into a room and thought, 'now what did i walk in here for?' we all do that.
i also notice that its like the more alzheimers sets in, the brain starts 'dumping' un-necissary information, like they dont need to remember what color car they had when they were 32, the brain starts losing knowledge it no longer needs. the brain goes into 'limp home mode' as my car manuel says, its just enough to get you there.
basicly thats why they dont recognise people they havent seen in a while, the brain is dying out with the body, so it only retains the knowledge it needs.i also think that the brain is preparing for death, thats why they get the stare...that glassy eyed stare is being 'reborn' if you will, on the other side.. thats what i think, im not a doctor, just an observer..
its like a chandelier. people are the bulbs. each bulb that goes out is a person they no longer recognize.. so if you havent seen granny in 20 years, yeah, she doesnt know you.your bulb went out and it wont come back on.so while they still do recognize you, make sure you keep your bulb lit. make sure you stick around that person because it must be scary to not know people who say they are your loved ones, but if they have one person they do recognize, keep close to them. once your bulb goes out, its out.. hope that made sense
my mom used to swear on a bible that the president would always come for sunday dinner. ( she thought swarzenegger was president,when she'd see his pic) my dad would go nuts trying to explain why this could not be, i told dad ,'as long as shes not making threats because he didnt show up, were ok.) trying to joke a bit. but when she would tell me how they had a lovely time sunday, id just say ' oh yeah? what did you guys eat?' cool!! that sounds really good, any left overs?' this made her happy....at least she'd smile and not harp on it...when she talked about 'the guy that did that thing over there, remember?'; id be like ' oh yeah, i remember him, he wasnt very nice;'. people in the room would look at me like i was nuts, but it made her happy... if shes happy, thats a good thing, right?
It started as severe depression, which she had 50yrs ago when she lost a baby and had to have 15 shock treatments....My problem is that my mom has controlled and manipulated me from the day on, I allowed it because it was just her and me....however, if she is not in control of things, she can make your life a living hell...she has an extremely difficult personality to begin with...the dr. recommended to me that she needs shock treatment again....she's 83yrs and I said no.....Ironically I work in a nursing facility in recreational therapy, but work mainly with profoundly retarded children, and I also see and know some of what dementia/alzhs and full blown Alzheimers look like...and I'm not 100% convinced as to whats my moms problem, yes there is memory problems, yes there is the constant repeating of question...only one mainly and thats, wheres the bathroom....everything in my house is labled, she is as sharp as a tack and doesnt miss a beat....I feel that my mom has a mental illnes because she is absolutely manipulating me and to some degree a narcissus...for example: when im with her she will literally get up 10 times in an hour to go to the bathroom, and ask every single time...Wheres the bathroom? there are others issues but I will focus on this one...One day I had to call one of my brothers to come and watch her while I went to work....at the end of the day I asked my brother...so how many times did she ask you wheres the bathroom? he says, she didnt ask me at all, in fact I asked her if she needed help.
Well I nearly lost my mine, which showed me clearly her level of manipulation and using and abusing me. BECAUSE I DO EVERYTHING FOR HER (control)
and to my brothers the sun raises and sets on them....in her eyes...there are many other situations that I have logged that to me are clearly manipulating behaviors....the things that she does to me but not to others, and she is very nasty if you cross her...to repond back and answer quickly and shut you down...leaves me to beleive that she is acting and manipulating....yes there are memory issues she 83 yrs...If anyone has any ideas or suggestions??? as I said before my brothers take no part and told me to put her away, and live my life, but its my mom and I know whats best for her but she is soooo complicated...its not that easy for me....I've basically been taking care of her my whole life I'm 46yrs and really have no live???? thanks for your help in advanced
I would never, ever, recommend or condone "putting her away." That sounds lke something you do for a terminally injured animal. But finding a suitable care facility and continuing to care for her there, advocating, visiting, and being certain she is getting the best possible care is a very viable option in my opinion.
Whether you keep her home or find another residence for her, it is clear that how you are interacting with her now is not working for you. You are certain that she is manipulating you and yet you continue to allow yourself to be manipulated. What's with that? Well, lifetime patterns of behavior are hard to change, I suppose. If you want to change and break out of the pattern, I suggest you get some professional help and support. You are definitely right that this is not easy for you. You deserve help.
If you were my sister, I would be giving you the same advice your brothers are giving you, worded a little differently, perhaps.
But don't take my word for it. Get some professional input. See a therapist. Call in a social worker. Talk to her doctors. Listen to your brothers. And remember that it isn't only what is best for Mom that counts ... you deserve what is best for you, too.
She's bedridden and can do very little for herself. She would have us do everything but I will not do things she is able to do. She says she can't but we know she can get her own drink off the table, feed herself, etc. Someone is alwways there to help but I refuse to wait on her for the few things she can do. I just feel like she should do the few things she is capable of doing. I'm happy to help as long as she is trying.
It is a fact, however, that in dementia memory loss is not consistent and it can be amazing what can be remembered. Forgetting an answer he received 90 seconds ago is not uncommon in some kinds of dementia. I had a lovely aunt who could not remember what she said in the beginning of her sentence by the time she got to the end. Behavioral problems can also be part of some kinds of dementia.
If you think you he is forgetting names deliberately and repeating questions just to annoy you, you two need a marriage counselor, or you need a lawyer.
I suspect this really is dementia or some other cognitive impairment. In that case he needs to see a behavioral neurologist and/or a geriatric psychiatrist. There may be some other treatments that will help, and it will definitely help your relationship if you understand what is going on.
Good luck to you, LeoLady.
bottom line is dont let any of the stuff get to you as its the illness you cannot reason with them OR wreck your head with wonder about thier behaviour i just let it all go over my head as it all made me ill with the stress.