It seems that everyone has an opinion. If my mom gets into a conversation with her eye doc, the dental hygienist, a niece who rarely visits or even grown children who rarely visit, EVERYONE has an opinion about how things should be. Mom is living independently and everyone thinks she would be better off in an elder care facility. She doesn't go out of her way to say that she is super happy, of course, because she has congestive heart failure and she is 92 years old, so life isn't perfect, but it seems to me that she is quite content most of the time. While I appreciate helpful information and references, it seems at times that people say to her she MUST live life the way they think is best, instead of according to her preferences. Since she is not strong, she doesn't argue and I just feel like she is being badgered inappropriately. If I'm not there, she just takes it all and seems to agree with anyone who is talking to her at the time. For example her eye doc thought she MUST have an iPad, and she agreed, even though she never goes on her desktop computer. We had talked about starting her on a Kindle, but once the eye doc got to her, she said that's a good idea. Other than being by her side 100% of the time, does anyone have suggestions about how to encourage people not to be so inappropriate with her? I have already suggested to her that she might start by saying she is OK with things and not be so agreeable to suggestions she ultimately will not do.
My grandmother had a giant contraption so she could read her mail. It scanned and enlarged everything, but it was terrible for cake mixes and pill bottles and other awkward things to read.
An ipad has a camera and you can place a cake mix in front of it and IMMEDIATELY have the directions legible. It also has choices about fonts and such for books you read. Some fonts are pretty but are cognitively VERY CHALLENGING. That can take all the fun out of a book.
Seperately. I wonder about the pattern. My daughter listens to all the crazy input at school about everything in her life and each day we debrief all the input. Should she wear her hair up, should she redo her math notes, should she hem her gym shorts a little shorter. At the end of the day we sit down and chat and it all pours out. We talk about each IDEA and decide which is a good idea and which is unsolicited nonsense. Perhaps that is why she shares with you all the stuff that people tell her. Perhaps she is asking for your help in clarifying which are mandates and which are sales pitches.
I know that listening to uninformed opinions can be a drag. The ones I hate worst are the people who know God's mind and insist on telling me, and the alternate medicine folks who are sure a certain supplement will cure dementia. I don't usually think I owe them any explanations (unless we are stuck for a topic in a social situation) so I usually just say "that is an interesting idea" and change the subject.
But, yeah, it is annoying!
Just a few clarifications... the eye doc wants mom to get and Ipad with all of the complex technology. She is starting with a Kindle (which is also quite advanced, but don't get me started on the comparisons). Why is the eye doc telling her what she must do, completely unrelated to her eye exam?
She agrees to the suggestions and asks me to carry them out ... even though they are counter to what she wanted previously. I sit down and talk with her through the "opinions" of others that she is asking me to implement and she then feels the ideas are not sound. It's taxing... to her and to me. She gets excited by things that are disruptive to her well being and then when I ask her if she really wants to go in that direction, she does not.
What do you do when everyone has an opinion .... we feel like a ping pong ball, depending on who spoke to mom and what new idea they insist she implement, until she thinks it over and goes back to her lovely life and the plans she already has in the works.
I'm not saying that things don't change and I'm not saying that some ideas are not helpful... they are. Some helpful suggestions are welcome.... BUT eye doctors telling her what kind of technology she should buy or a dental hygenist making an appointment with her to show her an elder care facility are examples that I feel overstep their professional relationships. My cousin who visits once every three years, etc etc.
Yes, this is a nice way for me to converse with my mom and help her think through the multitude of great ideas others have for her. I was just feeling like there were too many odd ideas coming out of left field, unsolicited and wondered how you might handle it. As with Linda GS' daughter, I suppose this is universal for all of us, throughout out life times. Thank you for your wording suggestion Yellowbrix. That is helpful.
Also, it would probably stop or slow down if my mom's first response was not to encourage all the ideas. I just feel like saying... who asked you for a suggestion and why does everyone feel like they have a better idea than the things my mom is already doing? She is OK.
It's just my own insanity in a slightly stressful situation. Thank you for listening and for your suggestions. I appreciate your ideas and hearing your similar experiences.
First of all, be aware that part of your upset may be due to your own concerns about the future and an awareness that her abilities are not what they were 20 years ago. This often brings up a lot of grief and fear and a desire to put your fingers in your ears and go “la-la-la-la” whenever even you have to think about her becoming more frail or disabled mentally or physically. Having other people allude to your own worst fears and concerns will cause anger and a desire to run the other way or lash out and tell them “everything is fine” because you cannot bear for it not to be. It is human nature to avoid painful end of life issues and serious concerns until it really is bad and you are forced to do something.
So take a deeep breath :), and consider this an opportunity to begin to prepare for any eventuality in small ways that will make it far less traumatic in the long run.
Now in terms of dealing with intrusive, “helpful” people, try this approach: Tell yourself that this is simply more information for “The Folder”. Buy an inexpensive accordion folder with divided sections in it. Place all of her important medical information in it.
Treat the “ helpful” suggestions as just more possible resources. Ask your mother to simply thank them and say that she is “in the process of gathering information and investigating all of her options right now ”. Have some inexpensive e-mail address cards printed out for her. She can then ask them to put it in an e-mail for her so she can "remember all the details". That way, you both can quickly scan and delete or just ignore all the suggestions.
If someone is persistent, she can easily act flustered, and cut them off by saying she just can’t possibly remember all that and repeat the request to e-mail it. She can ask them to list the pros and cons and give e-mail sites so she can make an informed decision! Some might even be useful and having the suggestion in an e-mail would allow you to go on line and get more info. People who really feel that what they are telling her is important will follow up, and the others will not bother. If nothing else you will acquire a file of possibly useful information should she ever need it in the future! That way, you will not be reinventing the wheel at a time when you are stressed and being forced to make a decision. Keep in The Folder all useful info and e-mail sites for future planning.
She could also ask for a "home safety evaluation" from an Occupational Therapist or Physical Therapist and Medical Social Worker, should you become concerned that others might be noticing something that you are not. If her doctor is suggesting she not live alone, he or she can order that such an evaluation be done in the home. If there are compelling medical concerns, then Medicare will pay for the evaluation. This is also true if it is part of Home Health Care after a hospitalization. You can also request time with a Medical Social Worker specializing in Home Health Care, if she is ever hospitalized. The Hospital Social Services Dept. can expedite this process. This sort of assessment is useful in long term care planning. Discuss the issues of what structures might need to be changed in the home so she can remain there, or what resources might be required if she cannot. Should she be hospitalized and return home, you can ask the doctor to request a “home safety evaluation” at that time and long term planning services from a Medical Social Worker. Setting up Powers of Attorney , Appointment of Representative forms, Bank account and bill paying, Will, an "Ethical Will" and other legal considerations can easily be done with forms downloaded from the Internet. You should take care of this if it has not already been done. It will save Court expenses and hardship if this is all in place while your mother is still competent to make her own decisions. You or whoever she appoints will be able to step in with full legal authority should she become incompetent or physically unable to manage in the future. Be sure she has Parts A,B,C,and D with her Medicare. You can make changes now through December 7, this year.
By seeing this as an opportunity to plan for any eventuality and these people as possibly valuable resources, then it will be far less stressful both now and if things really do change in the future. You can also start looking at her home now and seeing what changes might need to be made to accommodate her, should she not be able to manage as well in the future. It is much easier to start looking at clutter that might get in the way of a wheelchair, better lighting for failing eyesight, hand rails, timers so she doesn’t forget to turn off the stove, emergency alert devices, lists of medications in one place, info for Emergency Ambulance Personnel regarding her health, doctor, meds etc. Are there pets or someone to care for them so the police do not have to take them to a county shelter in an emergency? The City of Oakland, CA has a very useful 9-1-1 Registry Questionnaire so that senior citizens who are at risk for having emergency services called for them will have a form on site which gives all pertinent information to expedite emergency care.
This is an opportunity for you and your mother to set up a comprehensive care plan for her future so that she can remain in her own home with appropriate community resources and that is what you can be working towards. Basically, this is a wonderful opportunity to set these things up and gather all the info you can. Then when people make suggestions, you can tell them that you are gathering all these resources and see their “help” as just another resource for the file. And hopefully, it will remain just that.. a resource you can utilize immediately should you ever need it. Change happens and the more control you have at the time, the easier it will be for you and your mother.
Hopefully you will never need any of the resources you set up, and you can tell people that you have a comprehensive plan in place should you and your mother ever need it!
You are doing fine and appear to have things set up so your Mom can stay in her own home, which is what we all want for ourselves for as long as possible.
I have found that the people and things/situations that come into my life have been there for a reason, however stressful. When I can learn from and utilize them, things seem to work out ok. However, as a friend of mine once said, "It may be good for me, but I don't like castor oil any better than I did as a kid!"
There is a line from a poem by Francis Thompson which asks the question,
" Designer infinite!—
Ah! must Thou char the wood ere Thou canst limn with it?"
It sometimes does seem that we get a little scorched around the edges by the vissitudes of life. When those "vissitudes" come on 2 legs, however well-meaning, it can be really stressful.
One good thing about all you are going through is that by the time you are in your 90's, having to deal with whatever you have to deal with will be a piece of cake!
In my family we have a little ritual to express the ultimate frustration with someone. We reach out with our left hand as if grasping the "Offender" by the hair, and proceed to "slap" the #$@^ out of them with the right hand! (back and forth "slaps") It is amazing how that little gesture relieves the tension, even if we are only "slapping" thin air! ARRRGGGHH! is also helpful! Hang in there.
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