I have a relative I'm taking care of who is dying of incurable hyperparathyroidism. On top of the confusion that comes with this disease, she takes a lot of hydromorphone which adds to her fog. How long can does a person usually last with this disease? She sleeps almost 24 x 7, waking only to eat and go to the bathroom. Hospice has been wonderful about bathing her and supplying most medications, her basic needs are fully met. I hate to sound callous but I have to make plans on whether or not to shut down my apartment in Thailand if she's going to continue past March 2019. Hospice and Google give no clear answer, I'd like to connect with someone who has gone through or is going through this disease.
Being risk and ambiguity averse myself, that's what I'd want to do. I doubt if even people who are sharing your experience can help you with a reliable prediction.
Good idea to find a specific support group anyway, though. Best of luck.
I just read about your Aunts desease. It says its curable and rarely do you die from it. Its a tumor that can be removed. Are you sure your Aunt doesn't have thyroid cancer. People can die from it but if caught early enough the thyroid can be taken out and then you take hormone treatments the rest of your life. I would ask some questions.
Isn't there someone else who can take over Aunts care?
Such as Herpes Zoster, Stroke, Mini-Stoke, injury in the neck, some cancers, and there are a few others.
Hyperparathyroidism is caused my nerve damage due to lack of blood around the thyroid which in turn causes sensitivity to the person senses.
This is in some cases treatable, in most cases manageable. There is no cure.
So, there has to be a primary disease or injury that is causing the declining condition. You are missing something, something the Dr or hospice is not telling you.
Someone taking hydromorphone can end up sleeping as much as you are saying this person is, especially if this person is up in age, or the dosage is to high, or having a bad reaction to it.
I would talk to this persons Dr and/or hospice because from what I have read in your post and in my research there is a big piece of the puzzle missing.
I hope you find the answers that your looking for. If you have more information maybe I would be able to help you more.
Good Luck!
I had parathyroid surgery recently and had a parathyroid gland removed. I've also been trying to find out information about hyperparathyroidism. There's two websites that look very useful but I've still to get on them properly which I will do once more recovered from my operation. The websites are:. www.hyperparathyroiduk.com and also hyperparathyroidukactionfor change.blogspot.com Hope this helps. Best of luck.