My bil (AF vet) got covid after many years of avoiding it. He is highly immune compromised due to treatment for cancer. He even made it through his daughter's wedding this past November -- he and my sister sat at a table in the corner far away from people. His oncologist told them both to wear a mask anywhere and everywhere, and that is what they have done.
Dec. 23, he went to a local restaurant to pick up their meals for the next several days. Staff refused to bring the food to the car as they usually did so he had to go inside where it was shoulder-to-shoulder people. Yes, he had his N95 mask on (but as we all know, the effectiveness of masks is questionable). Five days later, he had symptoms, tested positive two days later and hospitalized Jan. 19.
For a while it was touch and go. Seven weeks ago he was put on a ventilator and PEG for feeding. Ten days later he was transferred to a hospital within a hospital that aims to get people off the vent. They were successful and the ventilator was wheeled out of the room ten days ago. Tracheostomy was removed this past Friday.
In the last week we have seen his recovery leap forward. He is of sound mind (for a while he was delusional), talking, eating, drinking, able to sit himself up in bed and move to the side of the bed and "dangle" (apparently "dangling" is a big thing). With assistance he can stand for short periods and transfer to a chair. He is not yet toileting on his own.
The place where he currently is says it is time to take the next step and be moved to another facility within the next week or two. My sister assumed they were talking a rehab facility but the VA only approves a SNF for him. In her thinking, a SNF is a way of giving up on him and she wants him in rehab.
Please share your experiences to help me understand better why VA is pushing a SNF instead of rehab.
I'm glad that you are working with the case manager to get your BIL the needed rehab. It does appear like he is improving by leaps and bounds. Good for him!
I would gather all the real opinions and why you can, ask the VA why they are leaning so heavily on the side of SNF or that particular facility if it’s a specific one they seem to be pushing. Ask the discharge coordinator at the hospital what the differences are, what are the doctors recommending? What are the choices and what do the people you trust the most recommend, visit them if you can and make the decision you feel best about. There are so many things to consider and the more information you have the better you will feel about it all, you don’t have to simply take what is easiest for the discharge coordinator or the VA you have some say here, you are wise to question here and make it an informed one.
" rehab" and any ongoing support needs ( such as toileting assist that you mentioned). Talk with his PCP and Case Manager ( usually a Licensed Social Worker or RN) to be clear on the POC ( Plan of Care) going forward to include " rehab" ....
SNF may sound more ominous than it is.....stay in communication with the care planning staff when he gets to the SNF......
Practice good self care.....
On a side note, I'm so sorry your BIL got covid after taking the precaution of wearing an N95 mask. Did it have ear loops? Those do not have as good of a seal, usually. How awful of the restaurant to suddenly refuse to bring the food to your bil's car.
This is an example of many, many things I will no longer do (go where there are crowds), because I do not want to get covid. That includes things that could benefit other people, like donating blood (we have 0+ and the very valuable O- in my household). While I would be masked, I couldn't stand people near me for that long of a time who are not masked. Also why I no longer will volunteer in the schools like I did, or in a community action group. I don't feel very altruistic anymore.
A few weeks ago I had to pitch a fit, because the HCWs doing my colonoscopy were not going to mask. I had called when making the appointment, and I was assured that they would be masked. Then I was told that the CDC doesn't require it, and that they would "review the telephone tapes." The HCWs DID end up masking, but you can be assured I won't be going back there.
I know people on this forum don't believe in covid, don't believe in masks, don't believe in covid vaccinations, etc. I am not one of them!
My sister has tried very hard to work with the case manager and not be perceived as going against the case manager and causing resistance from her, but the cm is stuck on a SNF and won't consider other options. And because that is what the cm has determined, that is what VA has determined. My bil called the VA himself on Friday. (His tracheostomy has been out for over a week and he is eating solid foods. I think the PEG will be removed this week.) Their secondary insurance (to what VA offers) will cover one of the facilities my sister has found, including the one his oncologist prefers. And his medicare kicks in on May 1.
On the other hand, SNF has been used by our sister (88) with equal success. Her medical coverage paid for the entire bill. She has been in the SNF twice during the past 5 years. I don't know if you are permitted to choose the SNF of you choice or not. I am pretty sure that we were given a list from which to choose the one we wanted.
The SNF way is most likely under the Community Care banner for the VA. So, you would have to go through an approval process.
I would recommend that you ask for the names of the SNF's available in your location - then visit them for your own assessment of their quality. If you find what you consider to be glaring deficiencies in the NSF's on the VA's approved list, you can document the deficiencies and request that you want/need a different facility and why you find it better for you. With good documentation you should be able to find the best one for you.
A starting point might be a visit to your VA to speak with a patient ombudsman. they are, in my experience, very knowledgeable and extremely helpful. While you are sitting there, they make calls on your behalf that can lead to your desired care.
I hope that I have been able to help you decide what to do that suits you best.
As I said, we have used both types of care and been pleased with both.
This statement of yours made me laugh (in a good way) -- "If you find what you consider to be glaring deficiencies in the NSF's on the VA's approved list, you can document the deficiencies and request that you want/need a different facility and why you find it better for you. With good documentation you should be able to find the best one for you." -- My sister spent five years writing protocol for hospitals and nursing homes (as a federal government employee). One time when our mom was in the hospital and we were both visiting, my sister said to me, "I cannot believe the conditions here. They are constantly breaking protocol and I am going to have to write up a report." I asked her how she knew they were breaking protocol and she said, "Well, I'm the one that writes it!" Until then, she never gave specifics about her job. And I will say that since then, and maybe it was because she filed a report, that hospital has done a complete turnaround and gone from being the hospital to be avoided to one with a good reputation in the community.
My sister said their other insurance (not VA) has approved her husband for a number of facilities of her choosing. All that she needs now is an open bed at one of these facilities.
She and our family decided to have a feeding tube placed instead and sent to rehab after already having spent a month in the hospital on the TPN, she was 108 lbs! He said "oh so a nursing home", and I honestly think he said this to scare her because we went against his plan and he thinks he's God. Makes my blood boil thinking about it.
The good news is while the rehab wasn't great, (they kept saying oh people on tubes usually move to the third floor, meaning the actual nursing home floor! Like it was a certainty. And we were like yah, no) she is now weaning off the feeding tube! I wish the best for your BIL.
We could have gone with assisted living facilities that offered rehab services or skilled nursing facilities that had rehab.
There were no separate places that had rehab centers.
We went with a skilled nursing facility. Mom had a very sweet woman as a roommate. She enjoyed her company. This woman was not doing well and her daughter ended up placing her in the residential part of the facility. Rehab had done all that they could for her and it wasn’t successful for her.
So, I suppose that is one advantage of being in a skilled nursing facility. Her mother would not have been a candidate for an assisted living facility.
I thought that it was great that the hospital where mom was actually started doing PT with her before she left to go to the rehab program. She went straight from the hospital to rehab. They provided her transportation. I was instructed to go ahead of my mother in order to fill out her paperwork.
Your sister may want to ask more questions about the plans for his care and therapy before concluding that the type of facility is the determining factor in how his recovery will go. It wouldn't surprise me if the combination type facilities were a little less expensive than the rehab-only ones since there is an opportunity for gaining a permanent resident. Spoiler alert: that is what happened with my mom when, after a second fall, she liked the facility she did her rehab in so much that now she's planning to move into an independent living apartment there.
I would check and ask about this SNF in terms of their rehab, PT, OT regimine, as they vary a whole lot. Some have quite a lot of rehab and some almost none at all.
With this level of improvement I think it is very unlikely that they are "giving up on him". He appears to be getting so much better in leaps and bounds.
I am assuming you have asked this question of the "powers that be" here? And what have they said to you?
He truly is moving forward from a near death to recovery, and like you I hope he gets wonderful support. I couldn't wish him more luck. I am so glad there is motivated family looking in here, because in this case it may make all the difference.
I hope you'll keep updating us here.
I'm only doing bits and pieces of research for my sister. She has a DNP (but has been bedside for about twenty years), so doesn't really need a lot from me.
No specific place has been mentioned but on her own, she found four rehabs within reasonable distance of their home that she was going to ask for a referral to. Johns Hopkins where he has been inpatient several times, University of MD since that's where she graduated from, an Adventist place, and one more I can't remember.
I don't think she looked at SNFs with rehabs because when our mom was in one, it was a very depressing environment and you had to wonder what, if anything, was being accomplished, other than folks marking off the checklist of what they did for that person that day. (But I will also say my mom was stubborn and rebellious and uncooperative and angry, so you get what you give, right? They probably had meetings where they drew straws to see who had to deal with her that day.)
Yesterday there was no discussion with the case manager about placement.
Or are they recommending long term custodial care.
That is the differentiation she needs to ask about. It's the SERVICE she needs to ask about, not what facility it happens in.
I have a friend who recently had a horrific fall and brain bleed. The hospital recommended subacute rehab. She and her husband fought like tigers to get her to acute rehab at Rusk-NYU where she made a complete recovery. Support from her neurosurgeon helped.
Clarify what's being recommended.
Also, if they are recommending ltc WITHOUT rehab, ask for (i.e., demand) a care meeting with the rehab team and go over their assessment of BIL's current condition and progress. Is it an accurate assessment? Or is it based on a previous assessment?
Don't be shy about ringing up the office of his local elected officials and getting support from the person who advocates for Vets and elders.