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I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
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V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
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I was about to say - I have tried a locally based twice a month support group for dementia caregivers. But not all of the discussion at those is pertinent to me. However, I find that being active on Agingcare has been the most helpful of all for me!
I requested direction to a dementia FORUM from the Alzheimer's Assn. All I got was being pestered with donation links. And no reference to a forum like this one. I even joined a local group that had regular meetings and each meeting wasted an hour on general health maintenance info and then.....finally... opened the floor to discussion from group members. THIS place has all the info you might need. The problem is that dementia and Alzheimers is incurable. So only individual topics can be useful.
Facebook does have some great groups to join as well, and much like this one, many subjects explored. Even has special groups for those with Lewy's, those dealing with Parkinson's and such. So many groups deal with individual problems.
Have you tried doing an online search for Parkinson's support groups in your area? The Parkinson's foundation has a search feature, just put in your zipcode. https://www.parkinson.org/your-area
Local hospitals and your husband's doctor may also be able to suggest support groups. Are you looking for something specific to Parkinson's or caregiving in general?
My husband started attending a Parkinson's exercise class at the YMCA and there was an informal group associated with that. We continued to meet once a month via zoom during Covid. And they even had the exercise class over zoom too.
Can you give us an example of a support group that is asking you to "sign up" for something? I would be very suspicious of such a thing. Would love to hear the example and hear what they asked you to sign up for.
In most cases you can be an active or passive member of a support group. I choose to be only active by attending meetings. I agree with StrugglingSon. Not all discussed at these meetings will be pertinent to you, but I myself have learned from such meetings how to handle some things. I'm no longer a member of any group as my husband passed. I am active in my community to keep myself busy and to learn from others how to handle certain situations. But, I choose not to be active all day, just for activities I want to attend-maybe 1 or 2 a week. Like music at happy hour, with or without a small drink. It's all your choice, but I learned not to sit in my apartment 7 days a week without being a little sociable. I rarely talk when I am at my dinner table with 5 or 6 other residents. I listen, seldom make a comment, but, I listen, to others in conversation, just to not to be alone. It is not good to be alone without being sociable. Makes for one to become a hermit, AND, if you are senior, you do not know when your time will come. Think if you weren't active, and you actually passed away in your lonely apartment, who would think to check on you? I choose not to live with my family members, or in an outside apartment. I chose to live in an active community serving 3 meals a day (I only eat 2 meals a day), attend only activities I really want to such as music at happy hour with or without a drink, and dinner in the dining room as opposed to eating a delivered meal in my lonely apartment. People are active even as little as I am, are much more healthy than those who do not socialize. I do not participate in activities because I don't want to color, sing, make hats, or whatever activities are planned that day. But, I do like to listen to our entertainer Friday afternoons, sing along if I want, and then after dinner go to my apartment. I don't want to socialize any more than that. I did all that years ago, and now it's my turn to relax without responsibility of being here or there at any given time. BUT, I can say, if you are not sociable, can be a scary situation. A resident here a few years ago was not sociable, not active, didn't talk with anyone. Sometimes ate dinner in the dining room. When no one saw him for a few weeks, someone checked on him. He had passed away in his lonely apartment and was there for at least 3 or 4 days before anyone checked on him. Any longer than that without anyone checking on you, could result in having to fumigate the apartment when they put you in the grave!!!. No one should be so alone they don't have anyone who can check on them.
If he was in a care facility, staff should have checked on him, I would think. Isn't that part of what elders sign up for when we choose or are compelled to enter a facility? I'm a quintessential introvert and not much of a socializer, but I would hope to be discovered sooner than 3-4 days if I went missing!
First look up whatever illness you have to deal with….alzheimers.org, dementia.com, Parkinson’s.org etc. They will have either links to support groups or an 800# to call to get info on their support groups.
You can try your local Area on Aging (Google them), or possible your Drs office might have some info.
Basically, you get the contact for the group and most times you register with the group, then are given info as to mtg place/time and that’s it, then you either show up for the meeting or sign in on your computer at appointed time for an online group.
I would be very of any support group asking you to sign up for anything. Groups don’t work like that. There are tons of groups both online and in person, and they are extremely helpful. Registration for a group is the norm though, so they have your name, location and what you are dealing with.
There are caregiver support groups at local senior centers. Check your city or township's senior center. You can also ask your local area agency on aging or hospital. They should be able to provide resources. That being said, I noticed many of these caregiver groups meet during the day and are not amenable to my schedule. I've seen other groups that meet via Zoom.
Alzheimers association does the caregiving support group dealing with dementia for their caregivers - it is free and a 6 week course. I go through Brewster on cape Cod . Joan Halifax has courses On caregiving at the Upaya zen center . They are free or By donation . You will get pretty Good advice on this forum . Find a social worker or therapist . Also I went to Community acupuncture and got support there .
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
Welcome! 😁
All I got was being pestered with donation links. And no reference to a forum like this one.
I even joined a local group that had regular meetings and each meeting wasted an hour on general health maintenance info and then.....finally... opened the floor to discussion from group members.
THIS place has all the info you might need.
The problem is that dementia and Alzheimers is incurable.
So only individual topics can be useful.
Local hospitals and your husband's doctor may also be able to suggest support groups. Are you looking for something specific to Parkinson's or caregiving in general?
My husband started attending a Parkinson's exercise class at the YMCA and there was an informal group associated with that. We continued to meet once a month via zoom during Covid. And they even had the exercise class over zoom too.
I would be very suspicious of such a thing.
Would love to hear the example and hear what they asked you to sign up for.
You can try your local Area on Aging (Google them), or possible your Drs office might have some info.
Basically, you get the contact for the group and most times you register with the group, then are given info as to mtg place/time and that’s it, then you either show up for the meeting or sign in on your computer at appointed time for an online group.
I would be very of any support group asking you to sign up for anything. Groups don’t work like that. There are tons of groups both online and in person, and they are extremely helpful. Registration for a group is the norm though, so they have your name, location and what you are dealing with.
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