I came down to South Carolina from New York back in January after my Mom had a heart attack and was diagnosed with dementia. I know my limitations, doubled with our contentious relationship (3 days tops for a visit and we’d be picking at each other, mostly due to her neediness and narcissism) living with her and managing her illness on my own would be impossible long term. She also had zero in savings, so bringing in someone was financially impossible. Needless to say I felt trapped; had to walk away from a lucrative job, don’t know anyone here, etc. A few days ago I placed her in AL with MC and am trying to clear out her house for a June closing. I’m sad, but don’t feel guilty because I know I did the best I could during my time here.
Anyway, for those who’ve placed a parent, how often do you visit? I sort of feel that she needs time to adjust and visiting frequently might derail things. I also need some time to myself after nearly 5 months of 24/7 caregiving that has left me physically and emotionally drained.
Often a memory care placement includes guidance on not visiting for some time initially after intake.
I am glad you don't feel guilty and recognize that you are human and have limitations. Yesterday I wrote about 5 people who mentioned the wrong G-word to describe themselve. Grief is appropriate, including grief that you had a relationship that is trouble, and including seeing suffering now.
Just do your best. In my own case my elderly brother was airplane ride away from me, his elderly sister. That was our limitation, not love. We all vary. Your case is all your own and I surely do trust you to make the best decisions you can.
If you mentally / emotionally can not take more than an hour or so 1 or 2 times a week then that is all you should do. Some people for whatever reason do not visit at all. (I could see this where the patient was abusive, if that were the case I would hope that the patient would become a Ward of the State and allow the Court Appointed Guardian handle all the details)
You should not feel guilty nor should you be made to feel guilty about how often or for how long you visit.
You do what is right for you,.
My Mom lives in Hawaii and when my brother asked for help, I packed up my things in Colorado and started a new life in Hawaii. Knowing how contentious the relationship between my Mom and I was in the past, I had my own place. My brother died last year and ironically, it doesn't seem to have affected her as much as I would have expected. This past January, my sister and I moved her into MC.
I have no sadness, no guilt, just wondering where this journey is taking me and trying to make everyday count while I'm on this journey. My sister feels sadness and a little bit of guilt. However, I suspect it is because my sister was not seeing the madness, anguish and the neediness like I am. I have to remind myself constantly "My Mom doesn't know what she doesn't know".
We were told that it takes about 5-6 weeks before we could make an accurate assessment about adjustment. My Mom is a complainer. I did not visit her for the first 5-6 weeks figuring that all I'd get is complaints anyway.
During the later part of the 5-6 weeks, the favorite grandchild came to visit and my Mom thought she came to take her home. Grandchild said no, she was just here for a visit and then my Mom started to complain about how no one visits her. Grandchild pointed out to her that I was temporarily working in a different state, however, I'd be back in a week. Between when grandchild left and when I got back, the nursing staff wanted my Mom to be checked out at ER for concussion because of her falls. I got my sister-in-law to take her. My Mom was so surprised when she showed up (and so was the AL). I think that calmed my Mom's fears about being abandoned and she's never again said anything about visitation again.
I go to the MC to visit because I want to visit. Not because I have to visit. While I am there, I check stock of her products, run her through her exercises, brush her teeth, give her some goodies (e.g. orange slices, peanut butter on crackers, etc.) If I have have errands in the car to do, I'll take her out of the MC and get her into the car and we do my errands. Occasionally, I'll take her out to a familiar restaurant. There are some days where I envision doing errands with her and she just won't cooperate with me. Change of plans, I do errands by myself. Sometimes my visit is 30 minutes, and sometimes she out of the MC for 4-5 hours.
I have found that I am better able to get a good assessment of what is going on when I go often, however, shorter duration....the shorter duration to keep my patience and wits around me. And most importantly, I feel very good about knowing what is going on in her life. My Mom will tell me that she hasn't seen me for weeks, when it was just the day prior that I've seen her. She loves the trips in the car even if she never gets out. My cousin who was 1 of 4 that took care of their Mom in this same stage, said that his Mom was very agitated if he did not come to see her, do a drive around the block and return to her home.
What I've been told about dementia patients is that they need structure in their life.
So even if you have had a contentious relationship in the past, realize that she is a different person now, and treat her like you would like to be treated. She might react to you differently and as the dementia progresses, her reaction to you will change. The best part about putting her in MC is that you can turn her over to caring hands before you get a heart attack.
P.S. Sometimes I need to deliver medicine or supplies and I really don't want to see my Mom. I have found that I can drop them off at the receptionist's desk and they will get it to the proper place. The last thing I want to have happen is for my Mom to see me, and then wonder why I didn't see her.
MIL wanted to move in with us after FIL died. A resounding NO was the answer. She would have destroyed our home and her dog would have defecated on everything if given a chance before being killed by our fearful larger dog, who is scared of other dogs. She kept asking to move to a small cottage with a middle age woman to take care of her. We told her that there is “No such thing here” she could afford. So she continues in assisted living by herself.
She wanted to know why she didn’t have an award for best Mother/Grandmother Ever like one of her neighbors and was informed very directly why she did not have the award. It was how she verbally abused her son on the phone, harangued her husband at the same time, didn’t interact with her granddaughter at all for years to the point she hardly knew her, and made so much work for me, her DIL, that I didn’t want to see her again. I was helping because otherwise she’d be adrift without any help. DH wanted her to sink or swim on her own when she had never had to do that for herself in her entire 87 year life. She hasn’t had to do taxes, pay a bill, do anything to keep her functioning for herself since she was in her 20’s and wouldn’t know where to start.
We were able to set up a POA, get her settled, clean up her house (hoarder house), sell it, cut off access to her purchasing things and bankrupting herself, didn’t give her a phone since we were afraid she’d call the police all the time like she was while at home, set up a tv for her, and she is now in a one room assisted living facility that the dog defecates and pees in all day long. The room smells like her old house - disgusting. I am worried they may kick her out.
Being 3.5 hours away is just not far enough from her.
I do video calls twice a week.
And, phone calls all the time.
I did also call every other day…to check in…