My mother will be 96 next month. She is bedridden and can only get up to use the bedside commode with assistance. She is still eating at least two meals a day. Sleeps a lot, but will watch tv off and on throughout the day. She is depressed, has mild dementia, and has voiced that she wishes the Lord would take her. She has been this way for almost three years now. How long can this go on? She is very frail and weak and is just miserable. It's very heartbreaking to see her this way, she has always been very active her whole life, so her just laying in bed, not able to do what she wants is so hard for her. I know that everyone is different, but I am just curious what others have experienced. Will she just eventually stop eating one day? Is it possible that she'll just go to sleep one night and not wake up?
I started my one month visit in early May when I noticed she lost an incredible amount of weight. She no longer had any muscle in her arms or legs. Two weeks later she stopped eating and began hallucinating. We started her on hospice.
One week later she died.
Her decline seemed like it would never end. But the dying process happened very quickly when it finally set in.
I flew back the day she died because my sister thought she was nearing the end. . That day I saw my mother in the morning and decided to go back and stay with her in the afternoon. It was good I did because her vitals were dropping. I called my sisters. We were all there with her and we wheeled dad in to be with her. It is a Catholic facility and we had a lovely nun sit with us too. She was so comforting.
It was actually a beautiful end for her. It was peaceful and she was not alone. we were all there.
Spend time with your mother. Don’t worry about the future. It will unfold soon enough.
I especially like
(It was actually a beautiful end for her. It was peaceful and she was not alone. we were all there.) I can relate.
The lord was merciful. Allowing my mother only to struggle and suffer In the last 3 weeks of her life Saying goodbye to her was nothing as I imagine it. Being present I felt peace in the room as she transitioned. I will miss her.
Sadly, she passed Christmas evening, after being sick a few days earlier. I hope she found peace.
They moved her roommate, who sadly is/was blind, and was in her own little world to a different room. She was either in bed or in a wheelchair, totally dependent on others for everything.
When my parents pass I hope that a Dr. Seuss saying helps:
“Don’t cry because it’s over, smile because it happened.”
Instead, think about whether you have made sure your mum is as comfortable as possible - which you have. And consider what can be done about her quality of life, however long or short that may now be.
Would having a radio on keep her engaged, or a TV? Would she appreciate listening to audio books? Does your mum have visitors, or is there money to pay for companionship from carers a couple of times a week?
I don't know whether Mum is at home with you, or if she is in a care home. I do hope that you are not allowing your mum's low mood to infect yours. It's difficult, but you need to separate yourself from your mum.
I am paraphrasing what AlvaDeer says - you are not responsible for your mother's happiness. You should try to only worry what is within your control and learn to accept what is outside of it.
My dad's death being at the beginning of covid, hospice was horrible, and it was traumatic, but I delt with it and let it go in a healthy manner.
I also have friends that want to sit and talk about who died this week in are town. They text me ask me over for some company, and go over the whole obituaries with me. Another friend has a shoe box full of obituarys she has cut out , and her Christmas tree is more of a memorial tree to all the people she has lost .
I can no longer be around any of these people anymore.
The day before he died, Roy's brain took him to a happier place. The carers in the nursing home were having parties each night and he was joining in - that's why he was so tired and wanted to stay in bed. He told me to go and have a drink at a pub on the pier before going home (the town is miles from the sea, but he used to live in a seaside town). He said he could hear the music drifting in on the sea breeze, and he wanted me to enjoy life. When he was better, we'd go and eat fish & chips from the paper while watching the waves, then we'd go to the bar and perhaps he'd take his guitar and play.
The next day he couldn't wake up.
I was shocked that his jaw had dropped and his mouth was wide open - far wider than I would have thought possible. It was a little scary and difficult to get used to. Roy's breathing was erratic - he'd stop for many seconds and I would think that he had passed, then the strained sound would start again.
I played classical music for him - he'd been a professional musician, so music was special to him - and I talked to him. I told him stories about myself and his grandchild and great grandchildren, and how growing up without a dad, I'd always longed to meet him - just in case he could hear.
He died in the evening, after I'd left him.
I've heard that sometimes people cling on for their loved ones - sometimes for you to get there in time to say goodbye and sometimes for you to leave so they can let this world go. I don't know whether that's true, or if it's just stories to help ourselves reconcile our hearts and minds to the awful sadness and finality of death. I do think that whatever we believe, it should be the thing that makes us feel better - never cling onto a belief that isn't serving you.
I would get Hospice on board. They are literally ANGELS. They are pros with their medical knowledge, experience, as well as huge hearts for dying people. Not many could handle it.
I learned to keep things calm, loving and play favorite music softly. I know it's hard, but comfort is key.
The one certainty is change. You will never be able to plan beyond a certain extent.
When he came home that night, he told me and he was anxious all night. At 1:00 he woke me and said something was wrong, off to the hospital. They admitted him and he just kept going down, trouble breathing, put on oxygen, didn’t want to watch tv, that was his favorite thing to do.
They moved him to ICU, said it was just a matter of time. He too was talking to his family members who had been gone for years.
My Grandson and I were on each side of him holding his hand when he let go of ours and put his hands up motioning to someone to come . He did this repeatedly for at least twelve times!!!
I know if my Grandson hadn’t been there he’d of not believed me. My husband was greeting his family and they were coming for him! It was amazing and it made us okay that he was leaving because he was with his family. Of course I wish we hadn’t lost him, but it was quick and he went happy.
All deaths are different and I hope your Mom will go peacefully also when the time comes.
Prayers to you.
You will know when life leaves their body. See if her doctor recommends Hospice Care. They will make sure your mom is comfortable. I hope your mom goes peacefully.
Theres not a lot of ways to tell for sure when death is coming. However if she is still eating, she could go in like this for quite a while. Yes, it’s true, she could pass without notice…stroke, heart attack etc, but again no way to predict.
I was told (unless sudden big heart attack etc) that the process of dying can take awhile. They will stop wanting to eat, take in any liquids. They will become unresponsive to more and more things like TV, people talking to them etc. They will sleep more and more. Eventually they will just lie there barely breathing until their body gives up breathing all together. But there’s a lot of times right before death, they could rally and be responsive again for a very short while.
Please contact hospice in your area to get help in your home. Or at least speak with her Drs, your Dr or get online and learn about death.
Hospice is really helping me with my husband who is dying of Alzheimer’s. He is just now not wanting to eat. He is very unresponsive most of the time. It’s so hard to watch your loved one be taken from you a little at a time. I know he would hate how things are for him now. But I am determined to be there for him when his time comes if possible. I’ve heard that some people want someone by their side and others wait until someone leaves the room so they can be alone. Not sure if capable of so much “planning” at end of life, but again that’s what I’ve heard.
Please educate yourself on death, it may give you some comfort. Hospice is the best.
So - ways of passing vary.
She died with me at her side, finally just drifting off to sleep.
I don't think anyone knows how your mother may transition or when.
Its been since 2/23/23 for me and it is still at times a shock. And, Jerry was my friend-companion for close to 20 years. I believe most of my grief / pain is from how he was - that he was assaulted in the Air Force Barrack - beat up - in the middle of the night for being Jewish. He was ridiculed something awful in addition to that one night. No one helped him. Not even the clergy (the Jewish representative there). This was in the 1950s - no name given to Post Traumatic Stress Disorder. After he was discharged (he couldn't function), he was told by medical staff (when he tried to get help) to 'go home and forget about it.' He couldn't. He never slept a night after that attack without medication. His PTSD was with him throughout his life. Jerry's saving grace? He found AA (I believe he developed drinking problem due to this event); he realized in his 50s he was an exceptional fine artist and painted, and he found me ... a friend and companion. He was two months shy of turning 90 when he died.
The relationship was difficult.
He wanted a romantic partner; I couldn't be that person (as much as I would have wanted to - and initially tried for the first six months of knowing him).
We were companions; I felt like a lion protecting her cub, esp the last six years of his life - when he needed me most and 'let me in' more to support/help him.
I was his fierce advocate for the best care he could have gotten, considering he lived in Sec 8 housing and ended up in a nursing home (or two).
In terms of grieving, what 'really' shocked me was that I felt I had been preparing the last year of his life for his transitioning/dying - knowing it could be any day. I was as present with him (4-5 days / week visiting) as anyone could have been. However, when he actually died, the grief hit me like a bulldozer. I then spent the next 1 year 2 months 'trying' to get the mental health / grief counseling that my insurance company offered. I would 'give up' and then realize "I REALLY need this' and call again. I wrote letters to the company's CEO and others ... asking for this 'benefit.' I said ... is THIS how you treat parents who have lost their child ... taking him or her to school in the morning and then they are shot and never come home"? You have them wait over a year for the therapy they should get that first week?
I am not comparing my situation - Jerry dying close to 90 - to a parent(s) losing a child although grief is grief - and if insurance companies offer this mental health 'benefit,' it should be available 'soon after' the death of a loved one occurs.
Sorry to go on and on here.
Even though Jerry's transitioning was as 'text book' as aging / declining could be ... nothing prepared me for this grief. I do believe most / more of it is due to how he was brutalized due to being Jewish. . . to think how these young men, 18, in the Air Force Barrack had a prejudice / hatred (?) or simply saw an easy target to pick on ... and they never realize(d) how they ruined a man's life.
Jerry was an extremely good looking young man - model beautiful. kind, sweet, everyone loved him. He never experienced being 'disliked' until he got into the service. He was not equipped on how to handle it.
I share your feelings and grief - you are grieving now. Here's a hug.
Gena / Touch Matters
My mama: the day she died she did not get out of the bed, which was clue one, then I tried to feed her and she would not take it clue two, she kept asking for my daddy clue three. She coughed up blood, started the labored breathing that lasted about 15 minutes. She never really opened her eyes when she asked for daddy and when she did pass away she just slept and then her chest stopped moving.
My daddy: three weeks before he died he wouldn't and couldn't get out of the bed. His ALZ was bad as far as just wanting to go "home" which was most likely the farm. He knew who his family was he knew me and his children and grand children were. He was in a group home and I had hospice bring him home because I knew in the back of my mind he was going to go and there was no way I would make it there in time if the staff were to call me. So I gathered his children and said we are bringing him home and he will die with us around him. Well he was brought home, set up in a medical bed and two days later I could not get a response from him. I called hospice and they came and gave him muscle relax medications because his body was going through muscle spasms. For three days he did not eat or take liquids he finally went into labored breathing and about 15 to 20 minutes later he was gone and it was very peaceful. Yes we cried but it just seemed like a peaceful sleep he went to.
My sister: She had cancer. The cancer was very aggressive. She did the chemo, everything you could think of. Three days prior she stopped watching tv, she couldn't sit up and she just started to sleep 24 hrs. She did wake and said she need to go to the bathroom and I could not move her and she would not release into the adult diapers - so I had hospice put in a catheter, which relieved the anxiety of having to go. The day she died I gave her the medication - same as my daddy had, and that relaxed her. I kept her favorite programs running on the tv - knowing that she could still hear them. As 11pm came up I was sitting next to her medical bed and I heard her start the labored breathing, I called her daughter and her son and told them get here - they were next door so they came as she took her last breath I prayed and it was peaceful for me but the kids were visibly upset which was expected. We cried together and hugged. We waited for the funeral home to come and then the kids went home.
All three death experiences were just them going to sleep. Mama was the shocker for me but as I have experienced more and more and as my faith grows more and more I become more at peace because I realize that I will see them again.
Please know that as I end this I have said a prayer for you and your family as you go through this.
As to our own stories. I am certain each is worth a memoir we don't have time nor the inclination to repeat. My brother was diagnosed with probable early Lewy's dementia at age 84. He died a year and one half later of sepsis from a tiny sore on his shin that he had kept hidden for some time.
Our own stories are individual as our own thumbprints, but what you need now, I suspect, is help with making some decisions for your own life, and I wish you the very best with those, understanding how difficult they will be.