I came in tonight and checked that a subscription had been renewed. I said "that's good - now set to the 10th November". He looked at me blankly. I repeated - "look it's been changed to 10th November". He just stared blankly again. I said, "we've just paid xxxx amount and the date's been changed to 10th November". So, now he's looking at the wall-mounted calendar and saying "November???", it's May. So, I continued trying to explain what I'd been saying. Now he gets very abusive saying "you're just having a go at me again. I know what you're doing - you are going to tell my daughter that her dad's lost it." I was shocked. I tried to explain again but the conversation went from bad to worse and I was just accused about causing another argument! I tried to get him to sit down and talk about the mix-up, but he just looks at me and says that he's fine, that he forgets some words now and again (actually all the time - can't finish a question/sentence unless I help him. I really think I should stop doing that so that people start to see the problem. Or, does he do it more when it's just the two of us. HELP! I feel like I'm losing my mind and don't think I can carry on with this relationship.
The first time she "gave" me a free subscription, I was at my previous home - been here 5 years now, and it predated the move by a few years! I tried ignoring the bill for the "automatic" renewal, but then they sent demands. I wrote them a letter with a payment for it, mainly to avoid any collection agency involvement. THAT was when I initially said this is an underhanded practice - too many elders will be tricked into thinking they renewed it themselves! I also indicated I was ONLY paying to avoid credit issues AND that they should consider this MY early bird notice to cancel after this subscription is done.
The second issue is sending multiple renewal notices - even after mom paid full price the second time, only a few months after the renewal was paid initially at the "early bird" price, they continued to send more renewal notices!! Paying twice extended her issues as did the cancel of the second copy to me when it was added to her account.
Thankfully this was around the time that I took over her finances, so they didn't get any more money! I would have been happy to renew it for her/have it sent to the MC place, but they just ticked me off so much I decided NO. I had to let her remaining mail go to the condo mailbox and then drive to pick them up, so as to ensure we got all the issues that were paid for! Forwarding you can end up losing some issues.
Don't want to break any rules by naming names, but the initials are R.D. Also they more or less tricked mom into buying their books (oh, that isn't us, it is a different company - still, it is the point!) She thought they were free (perhaps the first mailing was, but not after that.)
Mom had asked for my address one time (gave her the PO box #), as they will allow you to give a free one year subscription (the bait.) Apparently she found my street address somewhere and when a NEW bill to renew (she had just recently renewed) arrived, she paid again and signed me up. I realized this when I noticed the cover and checked the addresses. When I called, they would NOT refund (one was the early renewal "Save", the other was full price!) any money. They cancelled the second subscription and added another year onto her current subscription. I was NOT happy. Those magazines could have outlived her!!
I wrote to them just before the end of the last subscription and basically nicely threatened them if they renewed it again. I provided all information from the mailing box and told them in no uncertain terms NOT to renew mine again either.
we have to deal. I try not to think of the what ifs; What happens when I can't take care of him by myself anymore ? etc. Prayer works for me. Gods grace abounds and is enough. He saw me through my caregiving for my mother & also my son until their passing. I was much younger then ( 77 yrs. soon ) but I know and tell everyone that God will get me through this too. 🙏🏽🙏🏽🙏🏽s for you.
God bless
You need to understand that he is not doing this on purpose and you can not argue or explain. You will NEVER win an argument with a person that has dementia.
If he understands what is happening he is frightened, he may realize he is loosing control over his memory and that would frighten anyone.
Just reassure him that "we" took care of everything and it is all right. If he dwells on it because he does not understand redirect the conversation. "lets go watch our show" or "lets get an ice cream" but don't "push buttons you don't have to push"
Save the "arguments" for the big stuff and most of the stuff is small stuff. Getting to a doctor's appointment on time..that's big stuff..(but planning ahead takes the stress out of that)
The less you stress him the less stress you will have and in turn that will make him less stressed...see how that works out!
OH...and finishing sentences just give him time I know it is hard to do, I am a 100 miles and hour person and when I had to slow down to my Husbands pace there were times it drove me up a wall but to try to rush him would not accomplish anything. And again the less stress I put on him to do something or say something the easier it was for him to communicate what he wanted or needed. (until he became non-verbal in some ways that was easier but I then missed the drawn out thoughts)
"He looked at me blankly."
I sensed mom was starting dementia, it was very early and I hadn't learned much at that time. Mostly it was difficulty with finances, repeating herself and some confusion, but so minimal that if you didn't know her, you might not realize what was going on. When she said her cousin picked her up for a baby shower while I was taking her home, I corrected her and said that was my daughter, your granddaughter. Basically she clammed up (probably similar to your husband's blank response.) Fortunately I didn't continue the discussion (nor did she), but now I know better. Some might get nasty or argumentative at the first "correction." Others, like my mother, may just look inward and try to figure things out (which doesn't work either!) Ways to handle that? Drop the subject. Redirect the conversation, if you feel the need to continue contact, to something else. Do not try to reason with him.
Continuing to try to get him to understand is the equivalent of arguing with him. No amount of explanation is going to help if he doesn't understand the first statement(s.) It isn't really an argument in the true sense, but it IS pointless, fruitless and will frustrate you (and probably him) to no end. The best thing to do is drop the discussion or change the subject to something benign at the first sign of confusion.
"So, now he's looking at the wall-mounted calendar and saying "November???", it's May." Having trouble comprehending time becomes difficult. Although he knows (or can see from the calendar) that it is May, trying to grasp what November has to do with anything now he what is having trouble with.
"... says that he's fine, that he forgets some words now and again (actually all the time - can't finish a question/sentence unless I help him." Mom's standard answer about forgetting is she is old and is entitled to forget now and then! Problem is she wasn't aware of how much she was forgetting. If he doesn't object to help with words or finishing a thought, continue to help. If he gets angry, hold off. He may still get frustrated and/or angry at those times, but if you "force" correction on him, he may not take it well! There is a bit of finesse required (and a learning curve, for YOU!)
"I really think I should stop doing that so that people start to see the problem." There is no point to "hiding" the issue. Of course you don't want him to be embarrassed in front of others, but hiding the problem solves nothing. Many more people have dementia today, and so many are understanding of this problem as well. They might not only commiserate with you, but could be helpful too.
If you haven't already prepared by getting everything in order (POAs, wills, trusts, etc.), it might not be too late. A good Elder Care Attorney can determine if he is still capable of understanding and signing legal documents. However, being somewhat combative he might not agree to go. IF you can get him to go, let the attorney be alone with him so he can make the determination AND perhaps help him to see the sense in doing these tasks for general reasons (leave out dementia!) Oftentimes people might listen to others before listening to those closest to them.
Additionally, you might want to start checking out facilities. IF he becomes difficult, either physically or emotionally, for you to handle, it might be best to move him. It doesn't sound like he needs this yet, but it is best to be prepared. Sometimes some medication can help, but he would need to see the doctor and perhaps have more testing done. Not all medications work for all forms of dementia, and some are counter-productive.
Be sure you take care of you too.
Here’s why that was so important to me. In looking at the results of his scan, we were shown the areas of his brain that were actually being destroyed day by day. We could see the shrinkage, which was pretty sobering. If I remember correctly (lol - irony, eh?) it was the “executive function” area that was worst. External input goes directly to the amygdala, which is always on high alert and scans first for danger, then the executive function part of the brain quickly determines if it is really dangerous or not and devises a course of action. So when I was trying to explain to him why his doctor wanted him to eat these (nonfavorite) foods and not eat these (favorite) foods, he saw me as the enemy and everything after that was designed to protect him from someone who intended him harm. With the executive function gone, he is unable to mitigate this response by thinking, “Wait, that’s not a dangerous enemy; that’s my wife trying to help me.” So instead of arguing, I stop, look him in the eye (where I still believe I can often see his old self) and say, “I love you very much,” and kiss him on the forehead or cheek or sometimes the lips, constantly repeating to myself, “I’m not the enemy. I’m his wife trying to help him and his brain is physically incapable of understanding that”. Then I ask if there’s anything I can get him and smile reassuringly at him and go about my business. (That’s on a good day, keep in mind. It works well so I’m remembering more often to use it — more as a way to prevent tantrums and to keep me from accepting the invitation to fight). Meanwhile, yes, I have taken on the finances. And I follow him closely when he shows up with tools and heads off to fix something. I guess my formula is becoming, “Detach, Distract, Disappear, Decompress” with a healthy reminder that his brain is incapable of the responses I remember so fondly and miss so very much, but it is not incapable of recognizing acts of love, kindness, and compassion. As has been said, having a strong social support network and possibly a support group or therapist is a tremendous help in maintaining serenity in the midst of the chaos that is dementia. Knowing he is frightened and feels he’s fighting for his life (rather than angry and hateful) reframed his situation in ways that help me do the right thing more often than the wrong thing. I doubt we ever reach a perfect record, but celebrate your successes where you find them. It is a long journey and every bit of joy and victory along the way is a blessing for which we can be grateful. (There I go again, blathering on instead of stopping with the 4-line post I had intended. Hope something in there is useful to someone. Be kind to yourself first; it helps counter burnout.
Thank you again
It's really really hard to learn not to remind someone of something they just said but don't seem to remember. And it's hard see our loved ones deteriorate. Just know you're not alone. Each day we have to learn to work with the person in front of us rather than the person we think we know so well.
It's helped to remind myself that it's not me, and it's actually not her, either -- it's the disease. I won't say her words don't sting, because sometimes they do (her anger plays right into my my feelings of guilt for never being able to do enough), but I mostly don't take it personally now. Instead, I just move the conversation in a different direction, and the (only) good thing about short-term memory loss is that 2 minutes later she's forgotten she was angry with me and is back to her same old self!
With a broken brain, the person, your DH, can't comprehend what you're saying. So to keep Your sanity, learn to Keep It Simple.
I understand how hard it is, they lash out and as the caregiver and spouse we are who it's usually taken out on.
Before I knew about my husband's tumor I thought he was just abusive. I feel horrible about it but I spent 14 years with him being misdiagnosed. I assumed bc he's younger than I am he regretted marrying me when he was too young.
We have two little girls which only complicates it. My 14 year old daughter tells him she doesn't want to marry a man like him that she wants to be treated better than she watches him treat me. I wish our girls could understand that this isn't who he really is or at least was.
I know that words don't change your situation or make it feel better but please try to remind yourself that if he was able to choose that it would be a better scenario.
God Bless
Since you are already stressed, and at the beginning, it's best to get some help.
Dementia only worsens over time. The first things to go is the ability to reason and the ability to process what is being said. You can't argue with them. Their reality is not going to be your reality. With my Mom TV, dreams and reality became all the same. Changes can literally happen overnight. My Mom declined on a monthly bases.
Please don't hide his condition. It will only come back to bite you. Others will tell you even when they explain to family a LO has Dementia, the family won't except it. And yes they can "showtime" for a little while but just enough that family may not believe you. You need to get hubby to a doctor for a good physical. There are other health problems that mimic Dementia. Dehydration, low potassium, diabetes...if found he is in the early stages of Dementia I recommend a neurologist. If found he does have a form of Dementia, have the doctor sit down in front of him and look him straight in the eye and tell him. Also, get it in writing.+
You say "don't think I can carry on this relationship" then you need to know that caring for someone needs to be out of love. If you are not married, then you have decisions to make. Caring out of obligation does not work. Its a stressful, overwhelming job. There is no consistancy in a Dementia patient and you need a lot of patience and people helping. Will "his daughter" be willing to help? Because like a child, it takes a village to care for someone. If you think him coming back at you was abuse, then you have seen nothing yet.
They are capable of putting on a good show which is why even medical professionals may not pick up on the problem early on unless you get them professionally evaluated. There may be a geriatrician in your area who can do it. I suspect your husband knows something is “off “ with him and the frustration and worry is causing him to lash out at you. My mother has always been abusive but has gotten more so. Next came the accusations that we were stealing from her, someone was breaking in her house and taking things. Junk no one would want and her furniture that actually was in her independent living apartment after she sold her house, obviously didn’t make sense. She’s delusional now, roughly 4-5 yrs after it first all started.
You cant argue with them, what they think is real is real to them. Things you don’t view as confrontational, such as explaining something, is viewed as confrontational and makes them blow up. Her dr told me , change the subject if possible ( my mother gets more and more reved up) , if not, since she is in an ALF, leave. So if he’s safe, go to another room or the backyard. They’ll forget pretty soon.
He may not even realize that he has a problem and if not, you probably won't be able to convince him of that either. It seems that we have to learn a lot of patience, toleration, and understanding. If he's agitated a lot or overly anxious, you could discuss medication with his doctor. My LO was much more content and less accusatory after she went on medication for anxiety and depression.
I recall that my LO would make very odd accusations that were completely untrue, but, she believed them, so, there was no convincing her. The best thing is to go along and avoid conflict. They can't process what we are trying to explain. My LO would accuse me of leaving grease on her counter tops, but, there was nothing there. She imagined a lot of things that were not real, but, she could not be convinced otherwise.
You might check out the book The 36 Hour Day. It's about caregiving those with dementia. Most people don't understand how extremely challenging it is.I think it's particularly challenging when it's a spouse.
You may need to take over the bill paying, subscription renewals and financials 100% and stop discussing same, unless he asks.
Prepare a folder he can view of the accounts, amounts paid, and leave it where he can access it.
Consult Soc. Sec. if/when a doctor advises he should not be handling money, in which case you will become his Representative Payee. (This if you are qualified).
Get help by professionals like a bookkeeper, a CMM (Certified Money Manager?),
or CPA.
Since your dH is already concerned about you "telling his daughter", keep your financials private. That will protect your own privacy also.
Change your expectations that he may "be there for you", and make every attempt to be his advocate, friend, loyal spouse, even in the face of him not trusting you.
Do not allow "family", extended family, steps, in-laws to become devisive between the two of you. Take heed of when the two of you argue---especially after a visit or contact from his daughter, or others. Keep in your mind that your hubs is not the enemy, but an illness may cause him to act this way.
Keep this phrase in mind, asking yourself: "What exactly did he do wrong?".
You are exactly correct to allow others to see his decline for themselves. (This is done by saying nothing, and not explaining.) The situation requires that you NOT attempt to prove who is right or wrong, or who is crazy or losing it. See a therapist for support and your own mental health, imo. Or, choose someone you can trust to vent to, but not family, imo.
Chances are, if your husband has not been abusive during your marriage, he is not intending to be now, and it is a huge misunderstanding in what seems like an already difficult communication dysfunction. This is why the therapist for yourself.
I am not discounting that there may be abuse, or it may feel like abuse.
I have read on here not to argue with a person who has dementia or Alzheimers.
However, you have not said he has been diagnosed. You will get him to a doctor?
That is all for now. It has been my experience that what my hubs says can throw me for a loop.