I posted this in another thread and members there kindly suggested that I start a thread... Thank you to those members! I appreciate your recommendations... so here goes... I'm not sure if this is the right place for this conversation but I need to vent and perhaps solicit some suggestions for my mother - 87 years old and she's very angry and frustrated with me that I don't quit my job of 37 years - which I dearly love - and need for my own sanity (financially and otherwise). I've tried many times to hire caregivers for her and she fires them or refuses to allow them to come into her apartment (she refused to stay in Assisted Living facility - so we gave in and moved her into her own small apartment with the condition that she would get 'home help' when the time came). The time has come and gone...helpers are 1)Lucky to get in at all 2)Get fired soon thereafter. Yesterday was the last straw; I took her to the grocery store - before she could even get out of the car she wanted to tell me that she'd been thinking the night before and had come up with a solution - she'd figured something out - the something she'd figured out was that the new caregiver, T. who my husband had met exactly one time - and passed her info on to me (she works for a local elder care organization and was looking for new clients - yeah!) was and I quote 'having the hots for my husband!) She's always suspicious and says that this one 'has eyes for me' or that one is asking questions about me or my husband, etc. etc. That there is always a 'sexual' intent to sneak around and have a relationship (nothing could be further from the truth as my husband and I have a very happy/solid marriage, besides we're 71 and 64 years old - so shopping around for a 'good time' are just not on our agendas!!) It is a ridiculous conversation to have and I refused to engage in that discussion with her. She accused me of 'not wanting to hear the truth'!! Really? Well, I got her into the store and I stopped in next door for an appointment that lasted only 1/2 hour - back to the grocery store I found her and she exclaimed that's she'd barely gotten started - I said I've really got to be getting back to work - I thought she was picking up only a few things - well obviously a misunderstanding here as she'd come to buy up lots of stuff to 'stock up' - however the caregiver was supposed to come over and clean out the (stuffed, filthy refrigerator) and packed freezer - and she's buying pork roasts, sausages, 5 quarts of creamer, milk, etc. I asked her to wait until after caregiver gets the fridge cleaned out - that was the second time on this trip that she started yelling at me - making snide remarks about 'why don't you just do what I'm asking you to do for me!!!'. Refused to let me help her to the car; refused to let me help her put her credit card in the machine at the check-out. Made a real scene. I finally got the car loaded in the pouring rain (at her insistence that we not wait any longer for the rain to pass - since I'd rushed her to wrap up the shopping - because I had to get back to work). It was a lunchtime mid-day outing - but she forgets that only the day before I'd taken 4 hours off work to help her order some flooring/window treatments for her apartment - two days in a row of being unavailable at work is pushing it. My boss is very understanding, but will only tolerate so much of my absence. At any rate she was so angry on the way home (10 minutes) she spewed so much hatred at me - incredible, disappointing and saddening. She brought up everything she could think of in those ten minutes to tell me how awful I was, how I should get in to see a psychiatrist because I must have schizophrenia (my sister does) and other insults hurled at me until she was out of the car and headed back inside her apartment...basically told me not to come back and she'd never go shopping with me again...ugh...she fired the caregiver who was scheduled to come in today to clean out the fridge; called and cancelled all the improvements we'd ordered. I have no idea what to do about her now. She lives 3 miles away....I have a full time job, a home, pets, husband, etc to take care of, so life goes on - but not sure what to do about her and her anger issues... I think her mental state is declining and I've called her doctor and left messages but he will never call me back. Instead he asks her about me - and then she tells me ' I think my doctor is 'sweet on you'. He's never met me! I'm at a total loss today as to what to do, if anything. I'm burned out and exhausted after the last two days of dealing with mom...I guess I'll go bury myself in work, etc and wait to see what her next move will be - maybe she'll get someone to come in and help her. I could have someone contact her (from local caregiver organizations, but I'm completely out of ideas)...
So what to do with your Mom. Make a list of all of the things you do for her, write down everything. Now cross off half the items on the list, now cross off a couple more. And stick to that list. Next time Mom calls for you to help her with something, and it's not on the list, say "I am sorry, I cannot possibly do that". Yes, Mom will grumble, snarl, and throw a tantrum, but she would have anyway.
When our elders need a high level of care [hiring caregivers or moving to senior living] we need to stop enabling them to remain in their homes, if they can afford to move [some can't]. Why should they move, they have us at their beckon call.
I know this is now easy, many of us grown children had to wait for an emergency or two or three before our elderly parents realize they more help then we can give. That is what I had to do with my parents.... [sigh].
You have a job. You have a husband. You have a life. You can't fix the fact that your mother is older, infirm, and needs help. Did your mother take care of her own parent 24/7? Can she afford help but she only wants YOU? When our parents begin functioning like 3 year olds, we need to establish boundaries and manage them like 3 year olds.
Order groceries online that can be delivered. Order meds that can be delivered in blister packs of dosages (3 pills at 8, 4 at noon, 2 at 6-facilities do it all the time with assisted living). Tell her that Meals on Wheels will deliver in many areas at a small charge so she has less stuffed in fridge. If she cancels caregivers and home improvements but demands that you provide the services, that's both narcissism and probably cognitive decline. If she's always been this way, it's not going to get better.
Meds can help for depression and anxiety. Being accused of being mentally ill for not doing what someone else wants? Not a sign of a healthy mental person either. There are many posts on the site here about dysfunctional parents/families that will eat up caregivers and then keep going on. If mom doesn't want outside help now, she will get it at the hospital, rehab, skilled nursing facility, or nursing home that HER CHOICES put her in. You can't fix her without destroying your own life. Please be mindful.
You, however, can share your observations. Write him a bulleted list of mom's decline. Mail it, return receipt, so you know he's gotten it.
Stay away from mom for now. She's not dealing well with getting older, is she? Accepting help seems to be harder for some folks than others.
There will be a crisis, and you'll be in the position of arranging facility care with the discharge planners at the hospital.
Don't even consider quitting you job or her living with you or vice versa. It would be a disaster and I think you know that.
My folks are very similar, late 80's, dementia, tons of health issues but refuse any outside help. My mom can still reason pretty well but absolutely refuses to let anyone in her house much less the kitchen.
I can't force them to do anything but eventually a crisis will force the issue for them. It's tough to accept this but it's the reality for many kids of stubborn elders.
Don't take the abuse. Take a step back, detach a little. None of this is your fault and at your age and still working it's totally wrong for parents to expect kids to sacrifice their lives to full time caregiving. Especially when they treat you like crap.
But. Taking those two examples, the shopping trip and the interior décor session. What would have happened if you'd said "sorry, mother, can't do it. Love you! Talk to you later!" and put the phone down? I.e., just not joined in.
I expect she would have been astonished. And possibly quite shouty, after a stunned silence. But would anything awful have happened, to her or you?
I'd suggest a pre-emptive approach. Given you have a marriage to tend and a job you like, your time must be very limited. Look at your typical weekly schedule and decide what parts of it you are comfortable allotting to your mother. Then get your retaliation in first (!) and tell her you're taking her shopping on (say) Thursday late afternoon, picking her up at her home first and blitzing the fridge while she writes her list. That kind of thing.
The idea is that if you set the pace, a) you can see that the important things get done and b) it'll be harder for her to make random demands of you.
And if, on sober reflection, you can see that work, husband and mother into your time just don't go... well then it becomes about choices and boundaries. That's a bit more advanced.
I think my mistake was six years ago she lived in another state - was taken to the hospital for congestive heart failure and they called me - the only child (my sister, as mentioned is schiziophrenic and lives in a group home - after many years of living with my mother (personally I think my sister was abused - as you could hear the screaming and dictates from outside their home)...you didn't get this food off the dishes!! You are an idiot! You're stupid! Why can't you do as you're told! (this is my mother's m.o. for years - running anyone who's trying to do anything down - abusive and insulting - always superior herself but wouldn't lift a finger to help clean anything - she would cook - but resentfully and reluctantly...but her home was always a mess (I remember from my childhood - when every dish was dirty - the table was filled with dirty dishes, food, the place was always a mess...and nothing has changed in 60 years - she's still a mess - doesn't wash dishes until there are no dishes to use...leaves food all over her apartment - banana peels that are black - eggshells - coffeecups half full of milky coffee - just a mess! And then she says she's so ashamed of the way the place looks - but fires everyone I've sent her way to help. She even had a lady from church last year coming in FOR FREE who cleaned and took her shopping - and my mother picked her apart - criticized her for everything that she did - finally got mad at her because she was 'rushing' her in the grocery store - and told her not to come back!
Sound familiar? So back to expecting me to do it all...and we've ended up the same way - she's very critical of me - You've gained weight! Why don't you wear your hair the same way you used to THEN (a photo of me 30 years ago with 'big hair' ) and more and more insulting - yelling at me to SHUT UP! In front of the lady from the drapery store - again in front of the cashier at Kroger - you don't call me when you go on vacation (my husband is retired and we go to Florida in the winter) spewing and ranting - she resents my life in general - the fact that I have a good marriage (she never did) the fact that I have a successful career, a beautiful clean home and have worked all my life for those things - and saved for them. She quit working at 39 because she just couldn't cut it...never saved any money and basically isolated herself from everyone - even accusing my stepfather of trying to kill her (not likely)...it's just been a lifetime of crazy...
At any rate, you're right...I can't fix a lifetime of this kind of behavior...tried to talk to her doctor...but no return phone calls...I guess I'll just wait until the next time they call me from the hospital or wherever she gets taken to - to tell them to get her into a facility where she can get some help - because as she told me 'she needn't have bothered having a daughter if I was going to be so useless' ... rarely does she ever say the simple words - 'thank you' ... for anything. And it doesn't matter who or what you've done - my son, who is also very busy with his own life (works 3 jobs) was helping out with her groceries - says the same - she never thanks him for his efforts...nothing. She's told me she DOES NOT WANT him to shop for her, because he makes mistakes...she can't understand why I will not do all of her shopping, etc. I tried to explain to her that he's trying to help me out..but she can't won't listen.
I guess it's a moot point now...we're not going back over there (she's told us both not to come back)...I for one am going to follow her direction - and just stay away...I can't take much more of her caustic comments, belittling and accusing...I, like so many others, need a few positive comments (which I get from work, friends, etc)...and less of this dysfunctional parent.
You do realize that this is mental illness, don't you?
Arranging care for elders is NEVER easy (I have a sweetheart of a mom, and the last 5 years or so have been H*LL; there's always a crisis brewing somewhere).
But the situation with your mom is different. She has a lifetime of mental dysfunction. And perhaps some dementia atop that. Neither of these things is your fault or hers, but it does make the whole scenario more fraught.
You're right, there will be a crisis; mom will end up in the hospital and then possibly in an inpatient psych facility to get her stable on meds. And then to either a NH or AL, depending upon her level of need.
My mother is like yours, in some ways. Perhaps not as bad. But I spend as little time around her as possible. She demeans me. My mother is getting to the point where she can't live alone, but never gets around to even hiring a cleaning service. I am her taxi service (to church, medical appts. and ONE shopping trip/week). She squawked about my one-shopping-trip/week rule at first.
I know her feelings about me, and have to say that they have determined my feelings towards her. We don't have a good relationship, and I really wish (magical thinking) that she would live near one of my brothers instead of 2 miles from me.
Your mother is mentally ill, and probably has been all of her adult life. Your mother's treatment of you (and your sister) was/is abusive. I have a lot of sympathy for people with mental illness, but I also firmly believe that no adult should put up with abuse. Enabling abuse by accepting it is harmful to both the abuser and the abused.
Therapist Pauline Boss, a very insightful author, has this to say about the subject:
"If there was incest, abuse, or abandonment, you may want to give up on the relationship altogether.
Taking care of someone who years before was abusive or neglectful of you is beyond what is expected of you. Caring for a family member who was or is physically or psychologically abusive in dangerous. Feeling as if you want to retaliate is also dangerous. These are justifiable reasons for NOT being a caregiver."
Dr. Boss goes on to say that it might make you feel better if instead of totally abandoning the family member you arrange for his care by other people, such as in a care center. You have tried very hard to arrange care for your abusive parent, Sue. I think you've done all you can do.
Perhaps someday it will make sense for you to have limited involvement in your mother's life -- visiting her at a care center, for example. But for right now I think it best that you do as she claims she wants -- leave her alone.
As others have said above, don't quit your job. Quit your mother if you need to, but not your job, not anything that is a source of enjoyment and sustenance for you. Needless to say, you mother does not have your best interests at heart. Maybe she's too disturbed to even think about anyone's interests but her own. Nonetheless, you have the right and obligation to take care of your own needs first and hers second, if at all. If you can continue to assist her without it being toxic for you, then by all means do so. But don't let her bully and manipulate you into acting against your own interests. It's your life, first and foremost. You don't owe this to her.
Oh well...I regress. This is a lifelong pattern with her - conjuring up bad things about people she doesn't even know - she's done exactly the same thing with her neighbors where she's at now - in her apartment - sits and watches the neighbors come and go - this one is crazy - that one is a liar; the other one's children come to see her EVERY DAY - but not her daughter - who is worthless and doesn't help her own mother...
OMG, if I had a nickel for every time she's said that, I'd be a millionaire!
I will take your advice and stay away - until she calls me or until someone from a healthcare concern (ER, Hospital, etc.) calls me - and then I'll advise them of the situation. I have gotten my mother to sign HIPAA paperwork that allows her doc to discuss her care with me - but still my phone calls went unanswered.
Her mental status declined sharply around February this year when she said she had a UTI - was given an Rx for Bactrim and it made her sick. She felt like she was having some kind of strange experience - couldn't remember anything and couldn't carry on a conversation with me on the phone - not sure what was going on - the doctor went there and sat with her - and told her she'd be okay - apparently it wasn't a stroke or any type of life threatening reaction, but she keeps telling me and everyone else who will listen that the medication she was taking 'blew out her mind' - I tend to agree. Something happened at that time that caused her mental status to decline and now she's fearful and angry and confused; has trouble remembering anything except the past...and her tolerance of me and anyone else trying to help has diminished.
I want to express my deep appreciation for this group - for your kind words. Knowing there are others who are going through a similar situation (some worse, some better) has been helpful. I was able to get through the day - but barely a minute went by that I didn't think or worry about my mother - I hope she's okay. I've done everything I can for her - but I refuse to be a victim of her abusive behavior. When she's ready I'm hoping she'll call a caregiver - she certainly has enough cards and brochures from all the previous organizations I've contacted to come and help her (Home Instead, Caring Hearts, Right at Home) She's aware of Visiting Angels but I've not contacted them - and various independent ladies who she dismissed for one reason or another because she just couldn't stand them being in her home - some moved too fast, others too slowly; one scrubbed on her toaster with a brillo pad and scratched it...she had told me about that every time I've been there since it happened (about 8 months ago)...I finally ordered a new toaster for her...it's sitting there in the box - she won't open it until she gets rid of the moths (an occurrence that was due to storing bird seed in her coat closet that was infested with moths) - I took all her coats to the dry cleaners and hired a lovely quiet lady who came in and scrubbed the walls, floors, vacuumed, cleaned until there were no more moths - and now they're back! I told her to call apartment management and have them come and spray for bugs - she has moths because they're feeding on all the crumbs and food debris she has all over the place - banana peels, egg shells, coffeegrounds (these are being saved for the compost - in a tiny strip of land just in front of her deck, there's just enough soil for a few flowers - now all sunflowers which she cannot take care of)...but she insists on saving all the compostable items to add to the soil - which I believe will draw unwanted pests; everyone in the complex received a letter last year informing them not to feed birds, animals of any kind because they're getting into the roofs...and it goes on and on...
Bless you all for being there and listening to me...thank you for your kind words and thoughts.
So if you're worried and want to get in touch, don't wait for her to contact you, just carry on regardless.
Um. She is completely barking, no? You can't get anyone to consider forcing a mental status assessment on her?
I reminded her recently that her apartment down South was a nightmare - with clothes piled so high in front of the closet door that you couldn't even get the door open! Everything was filthy; clothing mixed up - clean and dirty - floors covered with debris; every surface of the kitchen was filled with empty jars, dishes - both clean and dirty; old food in pots and sitting around here and there; a bucket sitting on the kitchen floor filled with coffeegrounds, eggshells and old food - for the compost (in an apartment again - where it's not welcomed to be putting out rotting decomposing food)...I cleaned that apartment for days - before moving her into assisted living - and finally just got enough of her stuff out to make her comfortable - her clothing and personal items - and locked the door. I had worked for days to remove personal paperwork that had stacked up for years - so that I could safely dispose of it - bags and bags and bags of paperwork. Every medical receipt, every EOB, every piece of paper that had ever come in...was still in that apartment.
Today her apartment is essentially the same kind of mess...and there's no hope for getting it cleaned up..because I refuse to go over there on a daily basis and clean it for her...things have returned to the old normal...Last Summer I had two surgeries and didn't feel like much - for the entire Summer...and am just now starting to feel human again and have tried to help her...and you've heard the rest of the story. I will try to take care of myself (exercise, proper eating) and take care of my home, husband, son and pets - and all the other stuff that comes with life - while I work fulltime - at my job I love and hope to keep until I get too old to do it...hope that's a long time away.
I don't know why the doc isn't getting back to you if the HIPAA paperwork is on file. I'd send him a written dossier and ask if he's considered an inpatient assessment of her mental health.
Sit with your 8 pages and a colored pencil (if this is printed out, or do it online). On the first pass through, take out all the details that frustrate you but which are not necessarily signs of mental illness. For example, she blames your father's genes for you getting cancer. While I agree that is crazy, it is not certifiable, if you see what I mean.
Then go through again, and take out all the mentions of problems in the past. What she did in her previous home could be a supporting detail, but not a main point.
Are you ready for a third round? After having read and re-read this, what are the main points a doctor should know? Maybe something like this: (Just an example ... you'll do better)
I am concerned about my mother's mental health, for the following reasons:
1) Mother needs help with activities of daily living and she refuses to accept any paid help.
2) Escalating anger, making scenes in public
3) She frequently imagines sexual scandals on no basis
4) She is living in unsanitary conditions
After you've settled on the main points, add BRIEF details, picking not necessarily the details that are most annoying, but the ones that seem most related to mental decline.
Keep in under a page if at all possible, and in bullet points, not paragraphs.
I think this is worth doing, and an evaluation by her PCP would be worthwhile. Perhaps some aspects of her problems (such as depression) could be helped with medical intervention.
On the other hand, this has been a life-long problem. Your mother is and has been mentally ill. Unfortunately, there is no cure or treatment program for npd.
The fixable problem, in my mind, is totally under your control. You need to detach from this sick person -- emotionally and not just physically. And after a lifetime of this dysfunctional relationship I suspect you are going to need guidance and support to do this. See a therapist who has specific experience with children of narcissists.
She wants you to quite your job. Don't quit your job. Don't discuss it. Hang up or leave if she persists talking about it. She wants a ride to the grocery store. Say, "No. Wait until your fridge is clean." Just because she has crazy ideas doesn't mean you have to go along with them.
I think a period of physical detachment is a good idea, too. Perhaps after some counseling you'll be in a better position to visit her without being emotionally exhausted by it.
And keep reminding yourself -- this is Not Your Fault.
I also agree with pamz - I love my job; need the health insurance benefits for my husband and I; am building up my retirement fund so that I won't be a pauper in my golden years; and I'd like to hold off on SS as long as possible to obtain max benefits. My job is challenging enough to keep me interested and keep my mind active. Even though I'll be 64 next month - I'm no where ready to throw in the towel! It's the best job I've ever had - the people I work with are great - the work is interesting - and best of all - I get to work from the comfort of my home. That being said, though, it does require me to be AT HOME for the majority of the day. I have a lot of flexibility but don't want to take advantage of my employers generosity (in allowing me to work from home) or abuse the privilege. There's also a directive in our organization's SPG - no employee shall be allowed to work from home where there are small children or elderly people are present who require the employee's time/attention. In other words if you're working from home, you'd better be working - not attending to the needs of others. I can toss in a load of laundry or put something in the oven for dinner; but I have to remain focused on my work and available to my managers when/if they want to discuss or work on a project. All of my work is project based fortunately, so I get paid on a salary and not hourly...but getting the projects done on time and accurately is the ultimate goal.
Too many outings with mom or assuming responsibilities involving her care would negate the arrangement I made with my employer - so as it stands, I'm choosing my job over my mom's care. And you're right - with my job I feel appreciated, valued and am well compensated for my efforts. With my mother I feel demeaned, unappreciated and downright resentful of her preposterous assumptions (about other people) and the mess that she considers the 'norm'. I get nervous visiting her because it smells bad, it's filthy and in a state of disarray and disorganization from one end to the other - I feel compelled to clean, wash dishes, vacuum, take out trash rather than sitting there visiting with her...
So I guess, for now since she hasn't called me and I haven't called her...we're going to maintain some distance. I really can't take any more of her caustic comments now anyway.
My hope is that she will reach out to one of the many care organizations that she's had in the past to see if one of them can be persuaded to return to her home to help her. Talk about burning bridges - she usually leaves them with such a poor impression of her - with her complaints and that overwhelming mess she makes - that I'd be embarrassed to call any of them if it were me.
I'll contact the doctor with my abbreviated comments via their email patient portal. Hopefully it'll result in some action on his part. I'll keep you posted.
I work from home and love my job, and even though my mother thinks that means I have more time for her, I do not. My husband retired 3 years ago and we also help take care of our 3 year old grandson, which we love to do!
Slowly but surely, you need to establish boundaries with your mother and keep your priorities strong. Don't allow her unreasonable demands and demeaning comments to take over your life.
My mother didn't like it when I finally stood up to her and established and kept my boundaries. But she realized that as her only child I'm all she has and now allows a trusted family friend to take her out in addition to what I do for her. I have also had many private meetings with her doctor for the day when I need his assistance to allow in more skilled help. She could have that help now, but she's stubborn, so she has to live with her decisions, which I remind her are hers and hers alone.
Whenever she tries to guilt me into more care, I remind her of all of her options, and that I am doing what I can do to help her. I love her dearly, but if I allowed her to, she would take over my life with total disregard for anyone else. Each situation is different and difficult in its own ways, and I wish you the best!
I hate to think of my mother as a narcissist, however there were so many things that could have been prevented before all of this happened. She ran herself down as caregiver to my father who has dementia and would take no suggestions from anyone before everything hit the fan. It's left me very confused and for lack of a better word, angry. I'm now expected to walk in and correct all of the stuff that's going on....the problem is just so big that I really just want to run away! Throw in her criticisms of me (her only concerns seem to be about my brother) and all that she feels that I've done wrong, starting with moving into a condo which we did for our own sanity as every day for the past seven years had us running here and there and we couldn't do anything for our own home. She finds things that it almost seems she wishes I had-IE she has bad veins in her legs and she's looking at mine, which are fine and telling me I have broken down ones....one of many picks. I'm so very tired of this crap!. So I say to you, do NOT quit! You aren't going to help the situation for yourself in the long run. All it will do is cause more frustration for you. My mother has been depressed the majority of her life....never wanted to face realities. Funny, I'm the one doing that now.
Don't quit your job! I hope you walk away from this mess and let the chips fall where they may. She's done this to herself. Protect yourself. Sorry you are going through this but glad you made a great life for yourself despite a nut parent.