Follow
Share

Hi. My mom's swallow issues (due to surgery) have returned in full force and a new tube was placed. This one is different than the last one she had, it has 3 ports and uses an Enfit syringe that screws on and doesn't have a clamp to prevent drips, it appears that is done manually. It's been a brutal almost 2 weeks in the hospital with aspiration pneumonia, low blood platelets from the antibiotics, PPN until the tube could be placed and we just noticed this (tube was placed Wed).



I had told the woman who offered education we did not need it bc we knew how to use it and we were going to do bolus and not have mom attached to a pole all night. Now I'm panicking bc I see it's different so will have to chase them down again. I'm hoping someone can reassure me this one is not difficult to use. It looks awkward having to manually clamp it and screw on the syringe. We were so used to just sticking the tip in and doing everything through that one place, medications, water formula. They are also using a different formula, we used Promote 1.0 and they are using Jevity 1.5 and I just reordered more Promote and syringes that won't fit.



It's so upsetting that this happened after she had regained a good amount of her ability and now this added stress.



**Note this is NOT an end of life situation so no comments on that with regard to the tube please and thank you.

This question has been closed for answers. Ask a New Question.
If she is still in the hospital it should not be a problem asking for more help concerning the tube. My wife has had a feeding tube for more than three years. On hers the adapter can be replaced easily. It might be possible for you to replace the current adapter with a Y adapter so you can use the long nosed bolus. Unless I am mistaken, formula and supplies for enteral feeding are covered by Medicare and private medical insurance. At least it is in my wife’s case.
Helpful Answer (3)
Report

It doesn't seem you have a question for us, but are rather venting your frustration that a tube and formula you were used to was switched without your realizing that it was all changed out, and that you therefore mistakenly refused education offered.

That IS frustrating to be certain. As an old retired RN I will tell you that switching out of formula can also cause some adjustment digestion wise, so watch for that.

I am assuming that you have now ordered the correct formula and equipment and got the education required to use the new equipment. If not, do try youtube, as they have films on almost everything out there. Even how to reuse a one time use TomCat mousetrap! The company that makes the new tube should also have videos for you, so access their website.

All that being a wash it is back to the hospital that placed the new equipment to tell them what you just told us.
Hope you will update us that all is well and you now have good knowledge of all the new stuff, and I wish you well.
Helpful Answer (2)
Report

I would bet if you put the exact name of the tube/system in the search bar of YouTube, you could find all sorts of reputable videos showing exactly how to use the feeding tube system.

I would also see if there's a manufacturer's "help line" you can contact. They might be able to e-mail you instructions with video to help. They generally provide 24/7 help.
Helpful Answer (2)
Report

Hi and thanks for the replies. We are still struggling with this new tube as it is very short. I ordered what I think is the correct extension for it as the formula supply company says they don't have them, nor does home health who are coming out. So yes definitely was venting, we were expecting the same kind she had previously I didn't realize there are so many different kinds.

My dad did great with the longer one, this one he has to bend and it hurts his back (he had back surgery last year) and mom is deeply depressed and frustrated and there are family dynamics at play we've all been there.

I was thinking so far as to hire private just to administer tube feeds and meds but at so many short intervals during the day that's not feasible affordable or practical.

So we now know how to use it, it's just not practical for bolus/gravity feeding at all. I don't like the idea of just plunging it all in.

I will try calling the manufacturer that is a good idea.
Helpful Answer (1)
Report

This question has been closed for answers. Ask a New Question.
Ask a Question
Subscribe to
Our Newsletter