Mom is 93 with Dementia. She still knows who each of us are but forgets things. She is in the dementia section of a senior living center. Dad passed away several years ago but she insists she talked to him the other day. She is always asking where he is. My brother passed away last Friday but we haven't told Mom yet because of the Covid19 restrictions. We visit through a window. What should we do?
Has she asked about him?
If the answer to both of these is no then I would not tell her. It will upset her and there is enough stress and upset not being able to visit "normally" with family and friends.
If she has asked about him and he had been a recent visitor then tell her ONE TIME. After the one time it is "He is at the store" "he went on vacation" he is on his way but the traffic is bad" you can make up any excuse that will work for that moment.
He also asked if my sister was still suing him. I didn't say anything. She was.
You live a long productive life and then sadness at the end makes it seem empty.
I just told my parents of a sibling passing. I just said he went to be with the Lord.
Nuff Said.
When she does ask a question, does she remember what the answer was? Or, like your dad, she really doesn't remember that he died? If she asked, perhaps tell her that he hasn't been feeling well if you think a death conversation would make her sad.
I say don't discuss it until she brings it up. And then decide to tell her the truth or to tell her what you think she can handle.
If she's still asking about her late husband, then you see what I mean. She'll do the same thing with her son, and you'll be facing that dreadful conversation time & time again. (For what it's worth, my mother insists my late father is either sitting in the chair or lying beside her in bed at night; she has said that ever since he passed in 2015. Who am I to argue with her? For all I know, he IS there with her in spirit, as he had been for 68 years prior. If it comforts her, that's all I personally care about, you know?)
I wouldn't go there if it were me with my 93.5 y/o mother who has dementia & lives in a Memory Care ALF. The LESS info I give her, the less she has to obsess about. Especially bad news...........she's OCD on her best day, so bad news is something she'll dwell on endlessly. No good comes of it. Keep them happy at any cost, that's my motto.
I am very sorry for all of your losses, my friend. Sending you a hug and a prayer for peace.
That said, I personally dont see how any good could come out of telling your mom about brother. Others may have thoughts I am not considering, as is often the case.
Reading all the comments, the majority would seem to lean towards not explicitly telling her. Although she still knows who you all are, that is likely because she sees you, even if it is window visits. The fact that she was aware/told of your dad's passing, she still considers him alive and has seen/talked to him. I don't think she's going to take the loss of a child well and/or retain that fact.
My mother used to ask about my brothers often (one doesn't visit at all, the other wasn't big on it, and hasn't really in a long while, but both are still, I think, among the living!), but over time she stopped asking. Out of sight... out of mind!
As noted in responses to other comments, I can tell from what she does talk about that my mother is living about 40 years ago. She knows me when I was still able to visit. I think this may be because I would have been an adult at that time, so I am not TOO much different than before. I also visited regularly before the lock down. My daughter wanted a pic of the 3 of us, which a staff member helped with. Looking at the pic, she asked who "those girls" were, indicating my daughter and I. Then she asked if that was "Nana", her mother, in the center of the pic! She is now the only one left of her generation, on both sides. Many months ago she asked about a younger sister. Previous queries about her mother plus that discussion point to her living life 40+ years ago.
The only death I mentioned to her, about 2 years ago, was one of my cousins. I had only just found out, and she was mad no one had told her! Who was there to tell her? So, if her mind is in -40 years ago, everyone else is still alive and kicking! She also doesn't ask about dad, mostly her parents and some sisters.
Personally I will NOT ever say that someone she asks about is dead. In your case, IF she brought it up, you could make one attempt, if you felt it was beneficial and/or she wouldn't be devastated by the news. Clearly if it is upsetting to her, I would NOT repeat it again, no matter what she asks or how often. There are ways around not telling the truth or lying - as others suggested, bring up old happy memories and let her enjoy those memories! Simple non-committal answers and try to redirect the focus if she asks simple questions, such as:
Where's John? Oh, he's not here right now.
When's John coming? I don't know, I will try to find out or he's away and can't visit right now.
What is John doing? I don't know, if I see him, I will ask him.
Can I go see John? Not right now, he isn't home.
Last time my mother asked me if I'd seen her mother recently, I took a chance and said they were in FL for the winter. She thought about it for a bit and then said "They used to do that." Whew! I lucked out as I was afraid she would be angry they didn't ask her to go too! Clearly that WAS a fib, lie, whatever anyone wants to call it. I ONLY resort to this so as to keep her calm and happy. I don't want anything upsetting her.
You get the drift. It will be harder on YOU to have to relive your grief every time she brings him up, if she does. If she doesn't, so be it. Leave that alone!
In my situation, Dad was starting to slip into milder dimentia, I think it was more because his heart, lungs & blood circulation was failing to oxygenate his brain adequately. It was more of a mild retardation process as he declined. He may have understood things or not at the end, but I explained as many times as necessary with that patience & understanding. None of it was easy, but he had a right to know the truth of those he cared about. I think the last 5 years he carried a burden that he didn't do enough for Mom when she had her 1st stroke. I know he mentioned it once as I was a live-in caregiver the final 2 years. I explained to him that even though there is a "miracle" drug that seems to minimize a stroke's damage, there is still no guarantee anyone recovers fully. See that only mitigates the stroke that happened, Mom had a series of strokes, and that first one was just a warning the others would follow. In his own situation, he would have a series of events that took a little more each time from him just the same. I recall him telling me, that things he enjoyed as favourite foods, he just didn't want them any more. The foods, I didn't put too much thought behind what that meant, what he was trying to say was he was ready to move on. The first item was glazed doughnuts, I figured he just didn't want doughnuts going forward.
Anyway, honesty & full disclosure is always the best policy. No regrets for playing the game of life without holding back.
When my mother first moved to MC, she was still aware that her sisters and brother and my dad had passed away. Over time, she forgot all that. The only time I mentioned anyone passing, it was a cousin of mine that I just found out about. She was angry that no one told her, but that was about it. However, based on multiple times she has talked or asked about someone, I KNOW she is living her life about 40 years or more ago. She has asked about her mother, wants to go see her, know what she's doing for the holidays, etc. Her mother has been gone 40+ years! She mentioned her mother AND father to staff at least once. He died in our house when I was 10 (mom is 97 now.) She has brought up a younger sister and based on what she said, I know that she was reliving times also about 40+ years ago.
I will NOT tell her the "truth" about her mother, father, siblings as I know each and every time she will be angry and go through grief over losing them. What purpose would it serve to make her angry or cause her grief, each and every time? There are ways to respond without telling the truth or lying - turn the discussion around to memories, have them relive HAPPY times, not grieve each time you have to tell them! If the question is simple, like have you seen Johnny lately, you can just say no, not recently and drop it. Some people are more adamant, as shown in some of the other comments, demanding to go see the other person - we have to tread carefully. Telling the truth isn't always a good thing.
After reading all the responses, I can see there really isn't a one-size fits all answer. I think their are many aspects to consider as everyone has mentioned with some differing thoughts and questions for you to ask yourself.
My circumstance was different from all the others. My mom is the oldest of eight and until 2016 all of them were alive except one who passed away long before she was diagnosed with Alzheimer's at the age of 89. Currently she is 95 and has five siblings remaining ranging in age from 75-89.
I look at their personality (prior to their dementia diagnosis) for starters. My mom was always a strong, independent type which I took into account. The second thing I considered was where she was at in her disease. In the first couple of years, she would become very emotional (which can be common) which I've never seen her display very often throughout my life. It wasn't that she didn't feel those things, she was just private about it and also, it came out in other ways physically from holding it in - keeping the "stiff upper lip" so to speak. So when one of her brothers passed away in 2016, two of her siblings called to let me know because they didn't want to be the one to tell her if she was to be told at all.
I did tell her very gently and a little bit nonchalantly because at this stage of her Alzheimer's she was no longer expressing emotions much. She didn't cry and wasn't upset - she took it rather as a matter of fact. The other reason I told her was because my mom has never experienced the constant "asking" about any particular person such as in your case (and many others cases) where your mom is always asking where your dad is and insisting she talked to him recently.
So, I really think it is an individual choice. Her new facility made homemade ice cream the other day for the residents. I said "mom, remember when you and your family were growing up you would make homemade ice cream? who would love to lick off the blade?" This gave her a chance to remember it was her brother who ALWAYS got to enjoy the fruit of their labors!
I think the bottom line is, you will feel at peace with one decision vs. the other and you will have your answer - especially if you don't overthink it. You and only you can truly know what is the best and right thing to say or not say. The rest of us can only give you aspects to consider in trying to help you with that decision.
I hope whatever you decide it works out for you and I am so sorry for the recent loss of you brother - may God comfort you in your grief and give you wisdom in making your decision.
Your parent may not remember even if you tell him/her, but just let them ask. Make excuses if they don't get it that your brother died. They are in a different world now.
Keep writing! The biggest help for people in the midst of a family member with dementia is in your details. Thank You!
Dianne
could your brother have gotten a job and moved ? Maybe he won a cruise ?
my daughter died a year and half ago and as far as im concerned shes still living in her little blue house in ky.
When your mother gets to see your brother again she’ll find out soon enough.
why not let her think hes having adventures in the meantime.
My friend’s MIL had severe dementia and kept asking about her husband, who had died several years prior. Friend would tell her that her husband was in Heaven. She would get upset and cry each time. It was like hearing the news the first time, every time she asked. And she’d ask 100x a day. Same reaction each time.
So it was time for the ‘therapeutic fib’.
“Oh, he’s at work.”
”He had to go to the store.”
”He’ll be home later.”
She’d still ask all day, but it spared MIL getting upset and reliving the shock.
Are you lying to her; or sheltering her from unnecessary grief ?
Yes, she will be upset... so is everybody else. Give her the opportunity to process the loss. Then, allow her to move on with her life.
You can only do what you think is right.
"It was hard enough for us to mourn the loss." - This is reason I disagree with those who say be honest, don't hide the truth, don't lie to those with dementia. It will be hard EACH AND EVERY time you have to tell them! If the LO is just old, has medical issues, but no dementia, then sure, be honest. Just not when dementia is a factor!
The only time I mentioned a cousin has passed to my mother, she was mad that no one had told her. But I just did! Last time I was able to visit and hear something other than repeating how she liked some pair of shoes on sale someplace, I could tell from that "discussion" that she is living her life about 40 years ago! My brothers don't really visit (can't now) and her occasional queries about them stopped many many months ago. Out of sight... out of mind... She doesn't remember what she said or asked 2 minutes ago, so I would NOT tell her about anyone passing away.
Imagine losing a child every day or week -- that's how it'll be for her.
We've lost two close relatives since my mom started with dementia. I haven't told her and won't.
My LO has suffered more than enough. I don’t tell her anything that could distress her. I see no reason for her to have such information.