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He has MSA which is multiple symptom atrophy and a form of Parkinson’s. I cared for him a year at home and it got very hard to do. He is 6 foot tall and I an 5 ft 3. He has list his ability to speak, he can not walk, and he had clumsy hand syndrome. Even though I know he needs to be there it makes me sad.

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If you can visit him as often as possible. My daddy was 6 ft and there was no way I could care for him. I had him in a facility near me and visited him daily after work. I would take him his favorite food and we would have dinner together. If he had a problem during the night the nurse would call me and I would talk to him until he got tired enough to go to sleep. Saddest thing I ever had to do but I couldn't leave him alone and I had to work. I just made my day around him. blessings to you!
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anonymous1732518 Sep 2023
That's nice you were able to do that, sadly some people may visit often at first, then the visits start tailing off, until they stop all together, similar to a prisoner serving a life sentence.
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My SFIL had Parksinsons and was 6'5" tall. He'd fall and then his wife would call us to pick him up. It took 3 of us. He also had Lewy Body dementia and threatened to shoot us, and accused us of all sorts of things. It just wasn't a sustainable solution. We had full-time jobs and young kids in school. You can only do so much. There's no point in you (your husband's caregiver) losing your own health and well-being just to keep him at home. If you fall apart, what does that mean for him? You did your best. You are still doing your best. Blessings to you -- may you receive peace in your heart.
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Try to ignore unhelpful comments you read here, please. You did what was necessary to do for your husband to receive round the clock care. The disease at play is what's sad, and brings us the grief, which goes with the territory. In a perfect world, there would be no disease which forces us to take the lesser of the evils with regard to care options. Go visit dh as much as possible and hopefully, both of you will adjust to the new situation in time.

Best of luck to you.
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anonymous1732518 Sep 2023
Interesting you mentioned this. The roommate sharing the room I'm in fell on the floor, this morning. I'm glad to have been awake, otherwise he may have been on the floor awhile. Thankfully, he was not hurt. Then, he left the water running in the bathroom.

Fingers crossed for a quieter early morning.
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My mother was in this situation of having to place, but dad lived only 12 days on home Hospice. Were he alive now, he would have been in a home.
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Of course your sad. No one wants to have to place their loved ones in any kind of nursing facility, but there often comes a time when the caregiver must do not only what is best for the one being cared for, but also for themselves.
And that is exactly what you did....what was best for you both. And I say kudos to you that you understand that you matter too in this equation.
Caregivers have a 63% higher mortality rate than non caregivers, so now it's time to take care of yourself so you can be the best wife and advocate for your dear husband on this new journey you're on with him.
May God bless you and keep you both.
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Here's food for thought, hope he either has a private room or is roomed with someone who does not have many "issues" such as hearing issues.
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