My parents, (F - 87, M-81) both still have 95% of their marbles rolling around in their skulls and they both are still vertical (as my father likes to say), but WOW, they are now making HORRIBLE, unsafe choices in their everyday lives! I've seen this exact scenario play out in multiple elderly loved ones (grandmother, aunts, etc.) Is this simply the unavoidable trajectory every person takes when they reach a certain age?
Background - my sister had a MIL, who was otherwise very with it, but would NOT stop climbing on stools, ladders, chairs, etc. She fell and broke bones many, many times but kept doing this, insisting on "reaching that thing on the top shelf" or "changing that light bulb herself!" My grandmother fell multiple times the same way. My aunt fell off a stool several times and got VERY angry if anyone dared to mention taking her stool away. Now my mother recently climbed on a rickety step ladder to change a light bulb, knowing I was coming to her house a few hours later and could have done this for her! Said she didn't want ME climbing!
My father climbed a ladder and got on his roof to spread a tarp over a leak 2 WEEKS after having major back surgery, rather than pay someone to come do "such a simple task."
He can barely walk, yet REFUSES to use a walker or rollater in public. He has congestive heart failure and dumps salt on everything. He says he has stopped adding salt. Now uses lemon pepper. What is the #1 ingredient in lemon pepper? SODIUM! He recently had to spend a few days in the ICU due to his CHF. The reason - he stopped taking his diuretic! Said he was tired of having to get up all night and pee. He almost died. Was hurting in his chest for a week and developed pneumonia, but said he was afraid of covid, so he would not go to the ER. And yet, they REFUSE to stay home with Covid going on. They go out to eat multiple times a week. She goes shopping multiple times a week.
She visits the beauty salon weekly. When I express concerns about the beauty salon she says "Oh, she's CLEAN! She has a clean shop. She doesn't have covid!"
They both drive and neither should. I personally have witnessed my mother take her eyes off the road and BOTH hands off the steering wheel to answer her cell phone when it rings! My dad has poor reflexes and his driving is very jerky and scary!
My mom hoards and their house is an unsafe disaster. She won't let anyone touch anything and gets very combative about it.
What can we possibly do?
We have one that changes and has little snowmen, christmas trees, and snowflakes moving around on our garage doors facing the street. We also have a simple lighted garland and wreath on our front door and a small 3 ft. tree on a table in our LR.
I was once told by a medical professional “Let them live before they die”.
I’m also going to tell you NOTHING is going to change except your anger and frustration.
Even with my mom in a NH she still was trying to get up on her own. Assisted Living is no different. There is no 24 hour babysitter.
Repeating yourself and showing anger will bring you regret when they’re gone.
I was was also told that these behaviors are a natural part of elderly dementia.
You are in for a long ride.
"Is this simply the unavoidable trajectory every person takes when they reach a certain age?"
Sadly the answer is yes. I've seen it play out so many times with my own relatives, friends' parents, and now my own parents.
#1 - Is she safe?
Is there anything she does or neglects to do that makes her a danger to herself or others? Is the house safe? Is her driving safe? This one is usually the first safety issue to address - and use the police if you must to take away a driver's license.
#2 - Is she healthy?
Does she take care of herself and her home so it doesn't pose a health threat? (Sorry, old person odors don't necessarily count.) Does she take her medications safely? Does she get to the doctor and dentist... and follow their advice?
If you can say yes and site several examples of why it is "Yes!!!!," then your older family member probably has dementia. Alzheimer's dementia, aka senile dementia, is found in 75% of seniors 75 years old.... and the likelihood of developing it goes up with age. Memory loss is not the first symptoms of this disease; it's poor decision-making. Unfortunately, the person who has Alzheimer's disease is unaware that he/she is making poor decisions and will probably be feisty about this. As the family member, it is up to you to get those seniors to their doctors and/or neurologists so that diagnosis is made. In the early stages, medications can help improve their mental abilities.
Hoarding is a form of obsessive compulsive disorder. Securing a psychiatrist who treats patients with this disorder is probably the first step. Getting your parent(s) to meet with this doctor consistently is the second step.
Hee hee.
Here I am 78 and partner is 80. Living alone. And I admit, there are POOR decisions and I have/he has made more than one. Not bothering to bring up the stepladder for the change of battery in the sqawking fire alarm device, putting up christmas lights in the window. Just thinking "Oh, I will be OK! I don't want to haul up the stepladder; I can use the step stool".
It is stupid, and I can tell you for most of us we KNOW that when we do it. We had a house in the country and what we loved about it was the weed whipping, the wood chopping. Sold it last year because we knew we were not making good decisions. I did mistletoe removal and was SOOOO careful I thought, but one leg of the ladder sunk into a gopher hole and down I went, still hanging on to the tree. When we are old, the ligaments and muscles just don't flex. It took a long time to heal my shoulder. My doctor scolded me telling me I was very healthy, so a few more moves like that, endangering myself with paraplegia, and she would visit me for decades while I languished in care.
I don't know what to say about this. The elder thinks "I will be careful; it will be fine" all the while knowing ABSOLUTELY KNOWING that when we go down at some point, things are gonna bust.
I am so sorry for your worry. Perhaps try that. "Please don't make me worry for you this way; I love you. I need you well. I know how you would hate being debilitated and I would hate it for you. I know you know better. Please listen to your better angels."
If possible work with them to rearrange their cupboards, as suggested in another post, so the most commonly used items are down low. Do it gradually so they can learn the new locations.
Don't make demands, ask them their opinions on how to solve the problem, that you are worried and want to help. go slowly, if like my parents, they have lived in the same home for 50+ years change is very hard.
I recall a method of dealing with a balky child. Ask "do you want to wear the red coat or the blue coat?" One way or the other the child is going to wear a coat, but at least they get to choose the color!
Since they still have their marbles, have the chat with them. Take the step stools and all ladders away from the house. Tell them they still have a choice. Live at home with safer activities or end up in a facility. Bring up all the past health issues and the current covid problem. I know dad hates being up all night to pee, but it's better than being hooked up to a ventilator when he becomes septic and unable to breathe on his own.
I feel for you! It's hard to see them decline and even harder for them to accept it. Perhaps more visits to handle the visits or observation of what is going on. You, friends, handy man that you can say is a friend of yours to drop by several times a month.
Grandpa slipped and broke his arm going out to get the mail because he "didn’t want to bother" any of his 19 grandchildren by asking for help.
I think it is so very hard for a older people to show weakness by asking for help. Or maybe it's the expense?
I am 66 and always want to try to do it myself because then I know it will be done right, or at least if I screw it up I have only myself to blame. I have been seeking, and paying, for help with outside chores now. Yes, it comes at a cost, but so does a broken hip!
My husband received a few calls in the night to pick up Mom who had talked in the floor. Living only 10 min from them was too far at 2am. When we moved in together, we put a nursery monitor in their room so they could get our attention when needed overnight.
Though the move together was an effort to help my dad care for mom, it gave us a “front row seat” into his poor choices. We had 2 bathroom sink overflows. He always plugged the sink to do hygiene care but, without his hearing aids, he couldn’t hear the water running. What a mess!
While we were on vacation, my brother noted a Western Union receipt in his desk. ??? As a business owner, he NEVER in his life needed Western Union. He sought every “get rich quick” scheme out there. A foreign lottery had him sending cash to them in Vancouver to release the $ coming to him. He was acting like an adolescent with his cell phone running up extra charges for the first time ever. Talking secretively. We think it was about $3000 he lost. Though my mother’s body didn’t work well, she was generally a clear thinker. When we explain the situation to her, sh said to “stop him”. We blocked his car with ours so he couldn’t go to Western Union. He was so angry. “Get out of my business!!!” Mission accomplished though.
Once my mom had to have skilled nursing care (I herniated a disc getting her to/from her bedside potty and could not care for her any longer), my dad’s driving became an issue. He scraped the passenger side door on a fence post leaving our yard. Then, brought home (!!!!) a man he met in the Kroger parking lot who offered to fix it!!! As expected, a crappy fix but dad was happy because he saved $. One day, I followed him home from the nursing home. He was all over the 4 lane road!!! Dad had horrible back pain and was addicted to oxycodone. Upon arriving at home, I took away his car keys. He was angry. Upon his military retirement, he was chief of the motor pool at Ft. Hood. I promised to drive him twice/day to see mom.
All sad but we’re we not living together at the time, most would have gone unnoticed. He could have killed someone with his car. Caregiving is so very important. Even when a loving relationship is maintained, it is not easy!!!
If you have to, take the batteries out of their cars, or something. Disconnect a cable, etc.
Just be the daughter, not the parent and don't spend your time arguing or trying to change them because it's not going to happen.
Love them and let them know your available for whatever they need.
Thence try to relax and let them live their life happily as they can without having their loving daughter nag at them.
Hopefully, they will learn from their mistakes.
In the meantime, if you see a wiggly ladder, replace it. If you see a better stepping stool maybe with handles buy it and give it as a Xmas Gift. Just do what you can.
Life is short and you and you need to accept that we all do things our own way.
Just Love them while they are alive.
We begged them to hire a housekeeper. At first, my dad agreed, but did nothing. We tried to get them to hire home health to come in once or twice a week, they refused. Then, the nasty emails started. It was awful, but not unexpected. There was nothing we could do except wait for a life changing event.
The event that changed everything was a broken leg. We spent several weeks getting them set up with home health (required by their doctors) and housekeeping. It took 3 days to dig them out of the mess in the house. Repairs were made, laundry was done. They now have 24/7 home care. They do not want to move, none of us live nearby.
And the driving. Their vehicle had scratches and dents, there were a couple of near misses and a mishap with the car and a stationary object (I guess the object got in the way). The doctor was the one who finally suspended my dad's license. In our state, you can make a request for the DMV to retest an unsafe driver. Document the unsafe driving incidents.
Our hands were tied. It's been a really rough year for all of us. We've done our best to help them, but they want the past to be the present and we can't give them that.
Enlist the help of their doctor if you can. Their will and other legal documents should be in order. If you or your siblings need to step in, you can pay their bills, speak with their doctor and help with any decision-making. If you can avoid having to seek conservatorship if anything bad happens, do. Our parents kept all that information a secret from us. Luckily, we didn't need to worry.
Stay strong. Know that you're not alone. So many of us have gone down this road and it's uncharted territory for each of us. And it's not easy. Please don't forget to take care of yourself during this time.
I'm going to look for the book suggested in an earlier post. Humor does help with the stress.
Through my caregiving experience I took consideration of how my parent would feel about day to day life and getting through each day, and how I would feel in the same position because most of us will be some day, and I offered the help before it was needed. A critical thinker will evaluate their storage needs to get what they need regularly on a lower level, maybe see if they'd like to donate some things they're not using since a lot of families now are having a hard time do to this pandemic and don't have funds to even take care of Christmas for their kids, that may be a motivator to declutter, if not come spring maybe a garage sale would be a motivator to clear some things out and get storage on lower ground. Also ladies and their hairdresser and dads and their barbers it can be like family, I'd leave that alone. I would address all issues with them respectfully and with great forethought. Seniors are wise(r) whether you want to admit that or not, they've seen far more than we have, I have seen many family members over the years sit, watch, listen and calculate, they simply are evaluating whether the other person in the room or the topic is worth the extra effort, don't ever make assumptions on any seniors, everyone's life experience is different just because you reach a certain age does not mean you are unaware, money gets tight sometimes, and some things are sentimental and sometimes it just hurts to move simple as that.
Savings can deplete pretty quickly especially with inflation. My deceased FIL used to say, " You don't know how much it will cost to get out of this world." Therefore we need to be careful with our savings. I had to get elderly to understand my parents that I GOT to help in their final years. No quilt here.
I even wrote a book about my husband and I taking care of my mom called, "My Mother Has Alzheimer's and My Dog Has Tapeworms: A Caregiver's Tale." I tried to write it with humor and heart, since you need both, when dealing with Alzheimer's.
The second issue is your concern that this will end up in “a burden on the family members who have to take care of her”. Can you get a conversation going with the medicos in your family, as to who will do what when the inevitable does happen? Can you be clear now that you are not going to be the bunny who has to swallow the whole carrot? It’s nice for them to think of your parents being free and easy to do what they want, but people can change their attitude if they look at the potential impact on themselves. Don’t swallow “we’ll deal with that when it happens”, if you suspect that you are option number one in their minds. Lealonnie’s Bernie conveniently? died a month after her crisis event, but it doesn’t always happen that way.
No amount of reasoning, talking, bribing, cajoling on earth could talk Bernie out of washing her feet in the sink every night.
After she fell and broke her arm in 3 places one night after washing her feet in the sink, she proceeded to go downhill very quickly and passed away a month later.
Moral of the story: you can't save a person from herself. Sad but true.
Xena...climbing a ladder to spread a tarp on the ROOF 2 weeks after having major back surgery makes Bernie's story look like a fairy tale.
I like to call it stubbornness! My mom was very stubborn when she lived with me. She had to have everything her way.
They feel that they are still the boss and don’t want anyone telling them what is best.
I admire independent thinkers. I really do but when a person reaches a certain age and can no longer be totally independent, they have a responsibility to rely on others for help for all concerned.
As you say, their independent nature wrecks havoc in all of our lives.
The problem is, we can’t force them to comply and do what is best for everyone.
IF they really have their marbles, then, I guess you can just kind of throw your hands up and walk away? Sure. How can you do that? Don't ask me cuz I'm in a similar boat. Ready to explode due to my mom not wanting to do what she needs to do to be a success story after her surgery.
I guess the only thing that you might need to intervene in is the driving. It seems like they should not be driving. People are too stubborn for their own good. I guess we can all have an accident at any time. Has your mom always done these poor driving skills and not had an accident? Just dumb luck?
So sorry that you're dealing with so much crap!
I think the term is Executive Reasoning. Or lack of. My mom didn’t have dementia, could pass most cognitive tests, knew time, date, place, current events but would fall for phone scams, refused any outside help, would not use her walker and thought dads driving was just fine (OMG!!)
Its that no mans land of legally competent but for all practical matters a train wreck. I traveled that horrible road with my folks for years until the crisis that forced the issue.