First off, I continue to be grateful for this forum. The advice and support here has been life saving. I appreciate you all.
I have been struggling with trying to support my mom from another state as she goes through a seemingly unending string of health issues. It is so hard for her because until a couple of years ago, she had never been hospitalized. Her husband was diagnosed with Lewy Body Dementia 5-6 years ago, and it has professed to the point where he is having problems with his kidneys, incontinence and mobility. He was sent home after a recent hospital stay and hospice will likely be called in soon.
Only in the last few months has my mom started to work with an elder care attorney in Order to get co-guardianship of her husband with his daughter. She has a relationship with a financial planner, but does not want to share the information with any of us.
The two of them have made no plans for their future.
Both felt that should something go wrong, they would just move in with one of the kids up but never had a real discussion with any of us about it.
My mother is a hard no on assisted living as she does not want to live with anyone but one of her kids, and she assures me that she cannot afford it. It may be true. I don’t know for sure because she refuses to let me in on legal or financial info.
I have a tremendous amount of guilt and shame because I know that moving her in with me would cause problems. I am bad with boundaries, and I would feel compelled to do everything she asked. This would likely cause issues between my husband and me. It saddens me that I cannot be the 24/7 caregiver that she wants, but I know what I am.
My great fear is that they will spend their savings on her husband’s end of life care and she will have nothing. Her husband’s daughter’s stance is that this is what savings are for, and she should take out as much money as needed to hire caregivers for her dad. I see hiring caregivers as a benefit for my mom as much as for her husband just so she can have a break, but I understand my mom’s worry about running out of money.
I feel like instead of seeing her as a mom, I am now seeing her as a person whose problems I need to solve. This hate this. I also feel resentful because they refused to put anything in place or even discuss it with us, even though they knew years ago this was coming. They both are very much of the “you guys can figure it out when something happens” mindset,
It crushes me to see her so sad. I don’t have the money to put her worries at ease, and I am admittedly selfish because I want to have my own life. I worry for what her life without him will be like. She has never lived alone, and understandably does not want to at this point in her life. I read so many stories of people enjoying AL or IL but I do not think she will even consider it. She just says “nobody wants me” and it breaks my heart. I can’t make her understand that just because I don’t want to live together it doesn’t mean I don’t love her.
Pretty much everyone on this forum has told me that moving a parent into your home is not advisable, but what do I do if she has nowhere else to go? How do I get her to do the important work of planning for her own future while she is coping with what little time she has left with her husband?
Many elders lack the planning skills as they age. This does not mean you should foot the bill financially for your mother.
I've found that a good way to resolve complex issues is not to make declarations, but to ask questions. Sit down with Mom and say something like, "so your plan is to come live with one of the kids if you can't live on your own. How do you think that would go?" "Which of us do you see yourself living with?" "What if living with ______ were not an option?" "Why don't you like the idea of assisted living?" Get her to work through the details of her plan. Not only might this help her to see that it is unworkable, but it might help you to see other options that would be acceptable. Assuming her go-to would be "I plan to move in with you and your husband", you have an opportunity to tell her that is not an option and to give her reasons if you choose to. You say you are bad with boundaries. This is a chance to address that weakness in yourself proactively. Much easier to head it off and set this boundary now than having to set boundaries incessantly once she's under your roof. I have this same weakness and I am so thankful for my husband, who reminded me of this every time I started to weaken and consider allowing my mom to move into a house on our property (we recently built a two room cabin for ourselves, so living under our roof was clearly not an option). He could see the future and imagined me traipsing up to her house every time she needed a glass of water - or whatever. In fact, if it helps you harden your resolve, try visualizing what your life would be like in vivid detail if you found yourself needing to meet her every need.
As to the finances, it sounds to me like the step-daughter is calling the shots. Your mom has told her she will move in with one of her kids, so SD doesn't see the need to plan for her care after he passes away (and understandably - she thinks it's handled). Perhaps you need to also have a conversation with the SD and let her know your mom does not have a place to go. Ask her or your mom for the name of the attorney and financial planner and let them know you only want to make sure those professionals are aware that your mom's future arrangements aren't as cut and dried as she believes. I find it difficult to believe the attorney especially doesn't see red flags in the whole family situation.
Finally, you know your heart. You know you love your mother. She knows it too, even if she isn't feeling it right now. As much as anything, she is probably feeling her lack of planning closing in on her. You have to keep your eye on the big picture and recognize that giving in to her now will leave lasting effects on you well into your future. Do everything you can to spend time with your mom, even if it is only on the phone, so that she (and you) can know you've given her the best of yourself that you can.
Have you made plans for your own future? Being in the situation of having to care for my mom (in assisted living) and my mother-in-law (still in her own home) has made Hubs and I realize that the greatest gift we can ever give our kids is to take that burden from their shoulders. I'm deeply grateful to my stepdad, who was wise enough to plan for his and my mother's care twenty years before it was needed.
However, this is also not the right time to be having the discussion. As you say, she has very little time left with her husband, she's been through 6 years of increasing stress, and I dare say her world view is pretty bleak right now. You are not going to accomplish much in the way of considered decision-making in that short time and you'd do better to focus on supporting her through this specific ordeal. What happens next is a very big question but it isn't going to be solved overnight, and besides it can't be solved without reliable information which you do not have and she is currently in no fit state to provide.
If she raises the issue stick to reassuring generalities of the "all will be well" type, because it will. Or at least as well as it can be for anyone who has lost a partner and has always depended emotionally on having one. She won't be turned out of the house and left to starve, she won't be without family and friends, and she won't be (presumably) actually destitute. Just don't let her over your threshold.
Look. At the moment she is at a very low ebb and very afraid of being alone. Who can blame her? But you can't be her other half, and besides you have a nice husband of your own so that space is unavailable.
Combined with her fear of loneliness she may *also* have financial fears. Quite possible. But it is unfair and unreasonable for her to flag this up as a reason for depending on your help, and at the same time exclude you from the information you need to support her with sensible decisions. As for the ripping through their savings point: whose money is it, actually? And how well do you get on with the co-guardian daughter?
It may be well worth it to go visit your Mom for a few days, invite the daughter over, and assess the real situation there. Perhaps you can plant a few seeds about helping mom help you by sharing some of her financial plans.
Please don't hold it against your Mom to want to spend her last years with her children, it's a natural thing for a mother to want. Right now, stop worrying and continue to give your Mom the emotional support she is craving right now. Who know's what the future will bring? It's obvious you are a loving, caring daughter, but there is absolutely no value in worrying about things that may or may not come to pass. Use this time to find more creative ways to plan for the future if and when Mom wants to join you. Knowledge is power. Check out all the senior care options nearby you, and brainstorm with your siblings now, so you at least are armed with solutions "when the time comes". Keep us posted on your journey,
She was scared and didn't know how to deal with it. She tried to guilt me into being her solution.
You know how some people say they are like oil and water? My mom and I are like oil and fire:-(. So there was no way possible that I would put myself within reaching distance of her flame.
She was/is angry at me, because I was her old age plan and she thought she could use FOG to manipulate me to her will. It was probably the saddest thing I have had to deal with, telling her no and sticking to it. She rejects every other solution. She thinks if she is miserable enough I will cave in. SMH, it is never going to happen and she is missing out because of her choices.
I really recommend telling her straight out that she needs to protect half the assets for her future, because your home isn't and never will be an option, period. Then prepare for the tempest of FOG, it will come and you will be able to deal with it.
I have told my mom a thousand times, I love you, I'm just not the solution, sorry. Then I offer the actual solutions. She doesn't want them, her choice, it doesn't mean I change my boundaries.
As hard as this is, you must stick to your decision and not let her guilt you into taking responsibility for her. Have the information available for actual solutions, like paratransit application ready, meals on wheels, home health information, senior centers, senior housing, assisted living and anything else you think might be used as a manipulation.
I have to say, one of my pet peeves is that senior parents think they are still the authority and will tell us what we'll do. Uhm, no! And they have the nerve to call us selfish. Hah!
Stay strong!
If thre would be a way to talk with the atty. I think that would be the best way to go.
I'd definitely have a talk with your mom and say that is not an option. Neither is the secrecy. You should have planned better. And I can't help you I'd you are going to be secretive about things.
Your daughter in law isn't going to take you in, or have your best interests at heart.
I would say this option was never asked, it was decided without your input. Your not destroying your marriage over it and a secretive mom. And once the DIL gets her hands in the finances you can't stop her. Your going to have to start standing up for yourself. Get your brothers in on it too.
Do you want to pay for everything for your mom bc her DIL talked her into signing everything over?
Such good advice in the previous posts! You do not want this -- do NOT let her guilt you into it. Do not feel guilty about not wanting your mother to move in! SO MANY people end up regretting it.
If she still refuses to discuss final arrangements with you, say something like 'In all fairness, my hands are tied because I don't know your circumstances. But I'm sure glad you have a financial planner and attorney to work with.' Then change the subject.
Yes, it's sad that mom's husband is dying. It's also sad that she's decided YOU are her default future w/o clearing it with YOU first. It's also sad she hasn't planned for her old age and finds herself in this position to begin with. But this is what old age looks like for ALL of us; declining health, the death of a partner, plans that need to be made whether we like it or not, acceptance of the fact that IL or AL is likely a NECESSITY, period, making funeral arrangements, and so on. Life on life's terms vs. life on OUR terms which isn't always possible. Acceptance of what is vs. what we'd like it to be.
Once you firmly decide that mother WILL NOT be living with you PERIOD, then other options begin to make sense. But not until you make that decision. Until that happens, you will listen to mother's manipulations about 'nobody wanting her' and all that. You are entitled to have your own life AND mother is entitled to have HER own life, it's that simple.
She's shut you out of her finances, so until such time as she lets you into her secret world, there's not much you CAN do! Just let her know that living with you is NOT an option. Love ya ma, but living together won't work for me. I'm happy to help you figure out other options, however, so just let me know when YOU are ready to discuss your finances so we can come up with a plan. Stick to your guns; this forces HER to think about life down the road after her DH passes away and what comes next.
I know how hard all this is, but please don't put yourself in the position of being at fault! Or being the bad guy or your mother's savior. You can help her, certainly, but not until she's ready to ACCEPT your help and guidance, which includes acknowledgement that she will not be living with you.
Wishing you the very best of luck sorting out this whole situation. Sending you a hug and a prayer for peace, too.
It's time to talk w/step daughter to find out if the plan will include protecting assets for your mom or if the plan is to just use up all available funds to take care of dad now and leave mom without similar consideration. If no one in your mom's family willing to step into the planning sessions, I'm afraid the money will be gone when mom needs help/facility care. At that point, mom is going to end up wherever she can afford to end up.
If none of her kids take her in, they may have to help her pay for in home care until she reaches a level of being unsafe to live alone. Once she reaches that level, she will either qualify for Medicaid because her income is low enough - or - she's going to be over the limit and be self pay. Keep in mind that self pay might cost her more than her income. At that point, you reach out to elder attorney to see if a trust can be set up or her kids will have to come up with the difference.
Her kids need to know what this step daughter is coming up with as a financial plan. If mom's interests are not really being considered, you need an elder atty to help mom.
We are all in the same boat on the financial stuff. She for some reason wants to keep it secret, yet is so stressed about it. She does have a relationship with an eldercare atty, and she really likes her, so far they have been focusing on getting mom official guardianship of her husband, with his daughter as co-guardian.
in talking to mom this morning, I reminded her hat her financial advisor and atty are there not just for her husband’s issues—they are there to help with figuring out her future as well. She does not seem to have to consider this since she is so focused on her husband. I am hoping that this turned a light switch on for her.
my younger brother and I are pretty much pleading with her to include us in discussions with the advisor and atty just so we can help. She is competent to make decisions, but understandably overwhelmed. That said, I really don’t know how we can help her come up with a plan if she keeps shutting us out. I have zero interest in her money beyond making sure she is taken care of.
Seems like mom should have at least an advanced directive for herself - which outlines care she does and does not want to receive. She should also decide if she wants to be a "do not resuscitate" if she needs CPR. It would be helpful to have a discussion with her about powers of attorney for finances and medical decisions if she can not make decisions for herself. Those should only name people she absolutely trusts with her finances and her health care. It may be that she doesn't trust any of her children - yet - with those decisions. So build talk to all your siblings about building those trusting relationships now.
So that was their Plan A. A non-existent non-starter. Time for Plan.B..
"My mother is a hard no on assisted living as she does not want to live with anyone but one of her kids".
Break this one down. Part a) a hard no on AL? Fine. Her life, choice. She looks at other options.
Part b) only wants to live with her kids. She can WANT this, but has no RIGHT to have it. If it is offered, fine. If not.. time for some honest talk.
Yes those conversations are awkward & even painful. But being able to be honest & real with family is key. Better to be upfront now, then manipulated & miserable. Resentment & damage to relationships lay that way.
I know some that have had their parent come stay with them in that raw new bereavement time. To be successful, there needs to be a clear discussion on the time limit. (One week is an idea). Then Mom goes home. Starts the adjustment to being a widow. Decides *for herself* (with support) her next living arrangment.
"whose problems I need to solve". Try to resist this. Angle yourself as support instead, not her fixer. If her fixer, it's an easy leap to make you responsible for anything going wrong - an easy target to blame.
I am seeing a mental health counselor to help work through things, but wow it just seems to get worse and worse.
Make sure she understands that she cannot live with you.
Reassure her that she won't be abandoned, her children love her, and since living w/ you isn't an option, let's figure out what the next option will be.
The good news is that if her husband goes on hospice care, the medical equipment, medications, and hospice care are covered by Medicare. She won't go broke on any of that stuff. If he needs 24/7 care, then a nursing home is more likely the better choice for him because it'd be considerably less expensive. He can be on hospice care in a nursing home, and perhaps they can move to a facility together that has both skilled nursing for him and AL for her. It might be an easier transition for her if they moved together, too.
One hopes s/he will be able to advise mom on a good division of assets so that she won't be left impoverished.
In my view, if a parent's plan is that their children should care for them at end of life, then that is a conversation that needs to be had before the crisis.
(I am recalling my gma calling all her friends after she broke her hip. "I'm going to be an invalid and my daughters will wait on me!". She was excited.
Mom and aunt shut that down. That's where I learned to say "no". And that saying "no" to a parent in defense of your own life was a healthy thing to do.
If your nother has a financial advisor, she must have assets that are numerous enough to manage. Most financial advisors charge 1% a year to manage portfolios and most won't do that for portfolios under 500k. So there are funds there.
Don't let mom guilt you into doing something against YOUR own best interests.
How is your mom's condition? Is she still independent? And competent?
Glad to see that she's getting to an attorney. It's always tricky when a step-parent if failing. The step-siblings often want everything done financially with no regard to the spouse that will be eventually left behind with next to nothing. Happened to a good friend's in-laws. They had him divorce her since she was not coming back home and then they could protect his assets. She had her own money but her kids wanted her husband to pay for everything, therefore protecting their inheritance and pissing his away. Got pretty ugly.
Since you don't want her to move in with you, set a very firm boundary on not allowing it. Just tell her, sorry mom that will not work for me and hubby. Let's look at your options.
Can she live alone? She may not "want" to, but that might just have to be OK especially in the short term after her husband passes. She can move into senior housing where they have their own apartment but can see people in common areas. Assisted living, etc. Or hire an aide to give her company and some help around the house. You say she won't consider these things. But eventually she's going to have to. She'll adjust. It may take time and she may not be happy about the changes that are inevitably coming, but that's a sad part of life sometimes.
I think she's trying to manipulate you with "nobody wants me" statement. Don't let that hurt you. She's probably a little scared and desperate which is understandable.